A Foundation for Evidence-Driven Practice A Rapid Learning System for Cancer Care: Workshop Summary (2010) / Chapter Skim
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Appendix A: Workshop Agenda
Appendix A: Workshop Agenda
Pages 87-94
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From page 87... ...
Health Care System? Sharon Murphy, Scholar-in-Residence, Institute of Medicine Description of a Learning Health Care System from Differing Perspectives: The Societal and the Patient Level Lynn Etheredge, Consultant, Rapid Learning Project, George Washington University Amy Abernethy, Associate Director for Population Sciences, Information Technology (IT)
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From page 88... ...
New Approaches to Organization and Uses of 9:20 a.m. Cancer Registries: Local, State, and National Experience Moderator: Robert German, Associate Director for Science, Division of Cancer Prevention & Control, Centers for Disease Control and Prevention Georgia Cancer Quality Information Exchange William Todd, President & CEO, Georgia Cancer Coalition Strengthening State Cancer Registry Data by Linking to Public and Private Data Sources Joseph Lipscomb, Professor of Public Health, Emory University Reengineering the Cancer Data Infrastructure for Quality Evaluation and Care Management: The National Cancer Database Model Stephen Edge, Chair, Department of Breast Surgery, Roswell Park Cancer Institute SEER Medicare Data Linkage Arnold Potosky, Director of Health Services Research, Lombardi Comprehensive Cancer Center 10:30 a.m.
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From page 89... ...
Open Source, Open Access Platforms: Cloud 11:00 a.m. Computing for Cancer Data Sharing and Evidence Generation Moderator: Chalapathy Neti, Executive Architect Information Agenda for Healthcare, IBM Major Issues Impacting the Likelihood of Success of Large-Scale Efforts at Data Sharing and Data Integration for Fast-Track Evidence-Based Medicine Chalapathy Neti, IBM The Cancer Biomedical Informatics Grid 11:15 a.m.
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From page 90... ...
Technology for Health Care William Stead, Associate Vice Chancellor for Strategy/ Transformation, CIO, Vanderbilt University Medical Center Panel Discussion/Questions 1:30 p.m. Buetow, Neti, Stead, Thames Issues of Interoperability and Platform Integration • hat are some of the biggest impediments for IT W adoption and large-scale data sharing in cancer care?
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From page 91... ...
Fifteen-Minute Break Patient-Centered Rapid Learning for Cancer 3:00 p.m. Patients: The Health 2.0 Movement Moderator: Paul Wallace, Medical Director for Health & Productivity Management Programs, The Permanente Federation, Kaiser Permanente Research on e-Patients and the Use of Social Media for Health Susannah Fox, Associate Director, Digital Strategy Pew Internet Project Pioneering Online Communities for Cancer Patients: 13 Years of Shared Learning Gilles Frydman, President & Founder, Association of Cancer Online Resources Patient Driven Research for a Rare Cancer: Lessons Learned from Chordoma Simone Sommer and Josh Sommer, Co-founders of the Chordoma Foundation Learning Directly with the Patient to Inform Care and Build Knowledge Jamie Heywood, Co-founder and Chairman, patientslikeme.com
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From page 92... ...
Breakfast A View of the Future/Transforming Rapid Learning 8:30 a.m. for Cancer from Concept to Reality The Experience of Two Oncologists with Two Different Patients: Clinical Vignettes Revealing the Realities and the Possibilities Amy Abernethy, Associate Director for Population Sciences, Information Technology, and Informatics, Duke Comprehensive Cancer Center Patricia Ganz, Director, Division of Cancer Prevention & Control Research, Jonsson Comprehensive Cancer Center Impact of a Rapid Learning System for Cancer on 9:00 a.m.
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From page 93... ...
the Needs for Rapid Cancer Learning Moderator: Lynn Etheredge, Rapid Learning Project, George Washington University HHS Leadership in Stimulating Rapid Learning: Medicare and Cancer Care Lynn Etheredge, George Washington University Lessons from the CMS: Coverage with Evidence Development and the Oncology Demonstration Project Peter Bach, Associate Attending Physician, Memorial Sloan-Kettering Cancer Center The FDA's Role in Facilitating Rapid Learning for Cancer Janet Woodcock, Food and Drug Administration A Rapid Learning Health Care System for Cancer: Overview and Workshop Summary of Opportunities and Practical Needs Michael McGinnis, Institute of Medicine
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From page 94... ...
• hat are the future challenges for each of the HHS W health agencies and for HHS leadership? • hat has been learned from previous experience and W from this workshop that can inform and shape new national cancer policies?
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