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Conducting Biosocial Surveys Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata (2010) / Chapter Skim
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Appendix A Agenda for the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys
Pages 93-96

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From page 93...
... George Church, Harvard University 9:25–9:45 Overview of Biobanks and Data Harmonization Jennifer Harris, The Norwegian Institute of Public Health, Oslo, Consultant to NIA, NIH 
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From page 94...
... 2:00–2:15 Case Study 3 -- Laws and Regulations on Biobanks: Present Status and Future Directions Bartha Knoppers, University of Montreal 2:15–3:15 Discussion 3:15–3:30 Break SESSION 4: Informed Consent Session Chair: Barbara Stanley, Columbia University 3:30–4:00 Informed Consent: Best Practices Holly Taylor, Johns Hopkins University
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From page 95...
...  APPENDIX A 4:00–4:15 Informed Consent: Recent Developments in Legal and Ethical Requirements for Data Collection and Use Paul Appelbaum, Columbia University 4:15–4:30 Research with Biological Data Collected in Social Surveys: The Role of IRBs in Informed Consent Karen Maschke, The Hastings Center 4:30–5:30 Discussion 6:30–8:30 Working Dinner November , 00 -- Room 00 SESSION 5: Protecting Data and Confidentiality Session Chair: Bob Wallace, University of Iowa 8:30–8:50 am Americans' Changing Concerns About Health Privacy Alan Westin, Columbia University (Emeritus) 8:50–9:10 Quantifying Disclosure Risks Jerry Reiter, Duke University 9:10–9:30 A Privacy Preserving Framework for Integrating, Storing, and Querying Biological Data Murat Kantarcioglu, University of Texas 9:30–9:50 Assessing the Utility of Statistical Methods for Limiting Disclosure Risk: Value of Synthetic Data Sets John Abowd, Cornell University 9:50–11:00 Discussion 11:00–11:15 Break SESSION 6: Accessing and Sharing Data Session Chair: Myron Gutmann, University of Michigan 11:15–11:35 Data Licensing Agreements/Restricted Access Alan Karr, National Institute of Statistical Sciences
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From page 96...
... • Remaining questions • Conclusions • Future directions 3:00 pm Public Workshop Adjourn 3:15–5:30 CLOSED SESSION (COMMITTEE MEMBERS ONLY) -- Room 213 • Report preparation 6:30–8:30 Working Dinner November , 00 9:00–5:30 pm CLOSED SESSION (COMMITTEE MEMBERS ONLY)
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Key Terms

  • future directions
  • holly taylor
  • barbara stanley
  • workshop adjourn
  • public workshop

  • columbia university
  • closed session
  • dinner november
  • informed consent
  • report preparation

  • johns hopkins
  • jennifer harris
  • bartha knoppers
  • harmonization jennifer
  • harvard university

  • consent session
  • public health
  • directions bartha
  • practices holly
  • george church

  • remaining questions
  • norwegian institute
  • hopkins university
  • data harmonization


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