Rare Diseases and Orphan Products Accelerating Research and Development (2010) / Chapter Skim
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Appendix G: Committee and Staff Biographies
Appendix G: Committee and Staff Biographies
Pages 387-394
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From page 387... ...
He is Immediate Past Board President of the Association of Accreditation of Human Research Protection Programs, Inc. He has also served as Chair of the American Board of Pediatrics and President of the Society for Pediatric Research as well as the American Pediatric Society.
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From page 388... ...
Prior to her role at Dana, she was Senior Program Officer at the Robert Wood Johnson Foundation and then Director of the Health and Human Services Program at the Pew Charitable Trusts. Paul Citron, M.S.E.E., retired in 2003 as Vice President of Technology Policy and Academic Relations at Medtronic, Inc., where he was previously Vice President of Science and Technology.
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From page 389... ...
He was among the first clinical investigators to carefully document the epidemiology, cognitive and clinical significance of silent cerebral infarcts in children with sickle cell anemia and to demonstrate that both size and location of cerebral infarcts result in specific cognitive loss in children. These studies subsequently led to the basis of the first international clinical trial in sickle cell disease, Silent Cerebral Infarct Multi-Center Trial.
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From page 390... ...
His work on Marfan syndrome, a rare and potentially fatal connective tissue disease, has led him from discovery of the molecular basis of the disease to a current clinical trial of a surprising potential treatment: a medication used to treat high blood pressure. He has received awards from the Society for Pediatric Research, the American Society of Human Genetics, and the National Marfan Foundation.
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From page 391... ...
She recently completed a Career Development Award from the National Institute of Mental Health focused on the economics of psychotropic medications. She served on the IOM committee on pediatric palliative care.
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From page 392... ...
Among earlier projects, she has directed three studies of the development and use of clinical practice guidelines, two studies of palliative and end-of-life care, and Congressionally requested studies of employment-based health insurance and Medicare coverage of preventive services. Past positions include Associate Director of the Physician Payment Review Commission, Executive Director for Health Benefits Management at the Blue Cross and Blue Shield Association, and Assistant Professor of Public Administration at the Maxwell School of Citi
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From page 393... ...
Robin E Parsell is a senior program assistant for the Board on Health Sciences Policy.
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