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7 Workshop Overview and Wrap-Up
Pages 51-54

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From page 51...
... These concerns point to very important policy issues. Newborn screening is a highly successful public health program.
From page 52...
... Building trust requires dialogue to identify common ground among researchers, the public health officials who implement newborn screening programs, and the public that is affected. Tough issues require additional deliberation.
From page 53...
... One must have resources in order to store samples properly, to implement appropriate opt-out and informed consent procedures, and to develop policies on tough issues and ensure that all stakeholders are engaged in that policy development. Public health agencies will have a very hard time taking on all of these tasks on their own.

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