Skip to main content

Currently Skimming:

6 Ethical Challenges in the Use of Biospecimens
Pages 45-48

The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.

From page 45...
... · Investigators and biobanks need to decide explicitly on the level of identifiability that they will maintain in the specimens and data they use. Many patients are comfortable with the sharing of their personal biomedical data because they trust the institution asking them to participate, observed Ellen Wright Clayton, professor of genetics and health policy and director of the Center for Biomedical Ethics and Society at Vanderbilt University.
From page 46...
... A tremendous amount of epidemiological research and other types of investigations have been done in the United States for decades without any informed consent or notification whatsoever, according to Clayton. She said that the research community has moved to the point of recognizing that people and communities need to know more about what is being done in the research environment and with their information.
From page 47...
... health care that we need." DISCuSSION In response to a question about increasing the diversity of the population represented in biorepositories and how to address the fears of nonwhite participants about the potential misuse of biological samples, Clayton said that "some of their distrust is well earned." Overcoming these fears will mean earning their trust. "It is community engagement, it is responsiveness, it is including individuals, and [it is]

This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More information on Chapter Skim is available.