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Direct-to-Consumer Genetic Testing Summary of a Workshop (2011) / Chapter Skim
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Areas for Further Study
Pages 37-40

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From page 37...
... These areas include the impact on individuals, public health, the health care system and medical research, along with the implications for legislation and regulation. IMPACT ON INDIVIDUALS • Is the genetic privacy of individuals sufficiently protected by current laws and regulations, both generally and in light of the burgeoning DTC genetic testing industry?
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From page 38...
... • How should the medical education system change to enhance the genetics capability and proficiency of all physicians? • What are the most effective ways to provide ongoing medical education and point-of-care information?
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From page 39...
... • What will an appropriate informed consent document look like? IMPLICATIONS FOR LEGISLATION AND REGULATION • Does the FDA have sufficient authority to regulate DTC testing or are new laws or regulations needed?
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Key Terms

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  • unhealthy behaviors

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  • genetic privacy
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  • testing compa
  • dtc test
  • dtc testing
  • dtc industry
  • testing industry

  • improve public
  • genetic information
  • otherwise regu
  • underwriting life
  • subjects specified

  • unduly stifling
  • change unhealthy
  • care insurance
  • rent laws
  • increased risk

  • potentially enabling
  • document look
  • protect consumers
  • sufficiently protected
  • provide ongoing


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