Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases The Short-Term and Long-Term Outcomes: Workshop Report (2011) / Chapter Skim
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Appendix C: Summary of Public Comment on Agenda
Appendix C: Summary of Public Comment on Agenda
Pages 509-514
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From page 509... ...
Listening session participants came from Arizona, California, Connecticut, the District of Columbia, Florida, Georgia, Illinois, Iowa, Kansas, Kentucky, Maryland, Massachusetts, Michigan, Minnesota, Missouri, Nebraska, Nevada, New York, North Carolina, Oklahoma, Oregon, South Carolina, Tennessee, Texas, Washington, Wisconsin, and Native American tribes. During these sessions, the public were allowed to comment uninterrupted for up to 3 minutes, sharing personal experiences, suggesting topics to be considered by the committee, and offering the names of individuals whom they thought would be able to speak to the committee regarding Lyme disease and other tick-borne diseases.
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From page 510... ...
Main topics gleaned from the listening session are • There are varying strains of Borrelia species across geographic regions. • Debates remain on the case definition versus clinical diagnosis of Lyme disease and other tick-borne diseases.
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From page 511... ...
The third listening session targeted Michigan, Minnesota, and Wisconsin and included participants from Georgia, Illinois, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, Texas, and Wisconsin. Main points outlined in session from Michigan, Minnesota, and Wisconsin include • Existing diagnostic tests lack reliability, validity, sensitivity and spec ificity (serologic sensitivity)
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From page 512... ...
The committee used information provided during the listening sessions to commission a paper on challenges to diagnostic development and the management of co-infection and past infections. SUMMARY OF PUBLIC COMMENTS PRIOR TO THE OCTOBER WORKSHOP In reviewing the submissions to the Public Access file for the Committee on Lyme and Other Tick-Borne Diseases: The State of the Science, the following major themes were found among the submissions: • the strong desire for the committee to know and understand what it is like for those living with Lyme disease and other tick-borne dis eases in their day-to-day lives and the impact of being diagnosed or not having been diagnosed had on their physical and mental health, their economic situation, and their relationships in the community and with their health care providers, etc.
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From page 513... ...
• the need to look at special populations such as children, people with occupational risk of exposure, and low-income individuals • genetic/immune factors that may cause the disease to vary from person-to-person • a desire for an international standard for Lyme disease and the pathogens capable of transmitting Lyme disease in humans In addition to these comments, the following individuals were suggested to give testimony to the committee because of their expertise in the area: • Raphael Stricker (ILADS) • Benjamin Luft (SUNY–Stony Brook)
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From page 514... ...
• Dan Cameron (International Lyme and Associated Disease Society) • James Oliver (Georgia Southern University)
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