A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases (2011) / Chapter Skim
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6 Levels of Surveillance and Emerging Data Sources
6 Levels of Surveillance and Emerging Data Sources
Pages 91-106
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From page 91... ...
A manager in a healthcare delivery system who must consider a range of possible clinical initiatives and allocate resources will look to surveillance data reflective of the population served to set priorities for staffing by various health professionals, development of patient and community educational programs, investment in services and facilities, and budgeting. To plan for clinical care, a manager of a health plan or Accountable Care Organization (ACO)
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From page 92... ...
Online data tools, such as CDC's WONDER, 1 which can be used to query many CDC data sources, and the California Health Interview Survey's very user-friendly and flexible AskCHIS2 query tool, are valuable ways to provide access to surveillance data for policy audiences as well as for others. 1 See http://wonder.cdc.gov (accessed August 2, 2011)
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From page 93... ...
e HIE stands for health information exchange. Surveillance design will require explicit trade-offs in what is included and which user needs are addressed as resources are constrained by time, funding, data accessibility, and acceptability of use.
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From page 94... ...
This direct patient involvement is being facilitated and promoted by a range of online personal health records. Systematic collection of information from patients in the form of individual ized health assessments has been promoted by health systems, disease and care management entities, commercial wellness companies, and employers.
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From page 95... ...
The healthcare reform goal of universal coverage, along with broad promotion of health information technolo gies (especially the electronic medical record) , may markedly increase the value of the medical record for disease surveillance.
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From page 96... ...
The expected growth of EHRs necessitates their inclusion in planning and development of any chronic disease surveillance system. Implications of Multiple Providers and Multiple EHRs: The Role of Health Information Exchange For a registry to be reliable and credible for surveillance, it will need to fully reflect the care received by a population.
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From page 97... ...
. They emphasized the critical importance of interoperability of national surveillance programs and electronic health records and the utilization of harmonized data standards.
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From page 98... ...
The VHA is the largest integrated healthcare system in the United States, comprising 153 VA hospitals, more than 750 community-based outpatient clinics, and 260 Vet Centers. The VHAwide electronic health record is a notable data resource for disease surveillance, and a current initiative involves migration of their Computerized Patient Record System (CPRS)
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From page 99... ...
. Health Risk Appraisals Efforts to systematically collect information from patients in the form of individualized health assessments have been promoted by many organized care delivery organizations, including health systems, disease and care management entities, and commercial wellness companies.
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From page 100... ...
These may be provided by health insurers, integrated delivery systems, commercial providers of health information tools and support, and freestanding personal health records. Examples of this latter group include HealthVault from Microsoft,8 GoogleHealth,9 and Dossia.10 Patients are increasingly sharing their personal care experiences as well as impressions of individual physicians and other aspects of care delivery through online consumer reviews of individual physician practices.
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From page 101... ...
The creation of a surveillance system built upon current data collection approaches will need to balance a number of challenges, not least of all the tension between cost and granularity, and the differing needs of the different user constituencies of data. The growth of electronic records, as well as emerging data capture, mining, and search technologies, also pose major opportunities and challenges.
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From page 102... ...
The PHIN "will harmonize with and become integral to, the Nationwide Health Information Network, creat ing the easy-to-find ‘on- and off-ramps' that enable public health information management systems to use the Nationwide Health Information Network superhighway" (CDC, 2011a)
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From page 103... ...
The National Electronic Disease Surveillance System is another component of the Public Health Information Network. It is designed to promote the use of data and information systems standards to advance the development of efficient, integrated, and interoperable surveil lance systems at the federal, state, and local levels (NEDSS Working Group, 2001)
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From page 104... ...
, will enable FDA to query federally held electronic healthcare data, including administrative and claims data and data from electronic health record systems. These pilot projects will provide information about the complex needs of an active surveillance system and will encourage a design that addresses technological, methodological, legal, and operational challenges of the Sentinel System (FDA, 2010)
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From page 105... ...
2009. Use of electronic health records in U.S.
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From page 106... ...
http://www.iom.edu/~/media/Files/ Activity%20Files/Disease/Epilepsy/Panel%203-3%20Varosy.pdf (accessed August 2, 2011)
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