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Toward Precision Medicine Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease (2011) / Chapter Skim
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Appendix C: March 1& 2, 2011 - Workshop Agenda
Pages 109-114

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From page 109...
... SESSION 2: DO WE NEED AN AMERICAN GENOMES 10:00 AM PROJECT? A panel discussion -- David Goldstein, Moderator Is genomic information central to a New Taxonomy of Disease?
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From page 110...
... King Professor of Internal Medicine and Chairman of the Department of Medicine, NYU School of Medicine -- Microbiome Jason Lieb: Professor, Department of Biology, UNC -- Epigenetics; ENCODE project Helmut Zarbl: UMDNJ-Robert Wood Johnson Medical School, Environmental & Occupational Medicine, Rutgers University -- Environmental Health, toxicology Erin Ramos: Epidemiologist, National Human Genome Research Institute -- Sociological contributions, PhenX Panel discussion: ~30 min Lunch 12:45 PM SESSION 4: ETHICS AND PRIVACY 1:30 PM A panel discussion -- Bernie Lo, Moderator Alta Charo: Professor of Law and Bioethics, University of Wisconsin Law School -- Informed Consent, Privacy Sanford Schwartz: Professor of Medicine, Health Care Management, and Economics, University of Pennsylvania -- Clinical validation issues Debra Lappin: President, Council for American Medical Innovation -- Patient Advocate
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From page 111...
... • Klaus Lindpaintner: Vice President of R&D, SDI • Charles Baum: Vice President of Global R&D, Pfizer • orey Goodman: Managing Director and Co-Founder, C venBio Panel discussion: ~30 min Summary of the day, overview of tomorrow, discussion: Susan 5:00 PM Desmond-Hellmann and Charles Sawyers AGENDA Day 2 Breakfast available at 7:15 am in the Atrium Lounge Opening Remarks: Susan Desmond-Hellmann and Charles 8:00 AM Sawyers SESSION 6: PRAGMATIC CONSIDERATIONS -- 8:10 AM THE END USER A panel discussion -- David Hunter and David Nichols; Moderators 1. What taxonomy framework would be most useful for your end-user group?
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From page 112...
... • Janet Woodcock: Director, CDER/FDA • on Lorsch: Professor of Biophysics and Biophysical J Chemistry, Johns Hopkins University, School of Medicine • rian Kelly: Head of Informatics and Strategic Alignment, B Aetna • anford Schwartz: Professor of Medicine, Health Care S Management, and Economics, University of Pennsylvania -- Cost Effectiveness Issues Panel discussion: ~30 min Break 10:00 AM SESSION 7: INSTRUMENTING THE HEALTH CARE 10:15 AM DELIVERY SYSTEM TO DEFINE AND LEVERAGE A NEW TAXONOMY A panel discussion -- Isaac Kohane, Moderator Considerations for cognition, data handling, visualization and user interface. • aniel Masys: Chair of the Department of Biomedical D Informatics, Vanderbilt University Medical Center -- eMERGE consortium (using health care data to run genomic studies)
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From page 113...
... 113 APPENDIX C • ngrid Scheffer: Professor of Paediatric Neurology Research, I University of Melbourne -- Epilepsy • lissa Epel: Associate Professor in Residence, Department of E Psychiatry at UCSF -- Chronic Stress/ Obesity Panel discussion: ~30 min Final discussion and Closing Remarks: Susan Desmond2:15 PM Hellmann and Charles Sawyers (Committee will meet for an hour in closed session) Adjourn 3:00 PM
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Key Terms

  • taxonomy framework
  • breakfast available
  • agenda day
  • atrium lounge
  • cancer center

  • vanderbilt university
  • emerge consortium
  • effectiveness issues
  • myeloma research
  • cost effectiveness

  • clinical perspective
  • chief scientific
  • johnson medical
  • personalized cancer
  • validation issues

  • genomic information
  • scientific officer
  • using health
  • cancer medicine
  • informal data

  • information central
  • care data
  • national human
  • disease promote
  • clinical validation

  • charles sawyers
  • ngi kathy
  • health care
  • vice president
  • harvard medical


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