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Issues in Returning Individual Results from Genome Research Using Population-Based Banked Specimens, with a Focus on the National Health and Nutrition Examination Survey Workshop Summary (2014) / Chapter Skim
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References
Pages 69-72

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From page 69...
... Presentation at the Workshop on Guidelines for Returning Individual Results from Genome Re search Using Population-Based Banked Specimens, February 10-11, National Research Council, Washington, DC. Available: http://sites.nationalacademies.org/DBASSE/ CNSTAT/DBASSE_086008 [June 2014]
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From page 70...
... . Ethical and practi cal guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group.
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From page 71...
... Presentation at the Workshop on Guidelines for Returning Individual Results from Genome Research Using Population-Based Banked Specimens, February 10-11, National Research Council, Washington, DC. Available: http://sites.nationalacademies.org/DBASSE/CNSTAT/DBASSE_086008 [June 2014]
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From page 72...
... . Managing incidental findings and research results in genomic research involv ing biobanks and archived data sets.
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Key Terms

  • returning individual
  • genome research
  • incidental findings
  • human genetics
  • individual research

  • nutrition examination
  • american journal
  • genetic research
  • banked specimens
  • systematic reviews

  • cochrane handbook
  • reporting genetic
  • national heart
  • pathogenic incidental
  • intervention research

  • receive individual
  • sequence data
  • actionable genes
  • managing incidental
  • examination survey

  • cal guidelines
  • public perspective
  • exome sequencing
  • statistical agency
  • ing biobanks

  • secondary variants
  • individuals undergoing
  • annual review
  • pathology center
  • archived data


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