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1 Introduction and Overview
Pages 1-10

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From page 1...
... As health care becomes more digital, clinical datasets are becoming larger and more numerous. These data, many of them gathered through the normal course of health care, offer great potential for extracting useful knowledge to achieve the "triple aim" -- improved care, better health for populations, and reduced health care costs.
From page 2...
... For health system leaders, the current trends of increasing complexity and paucity of the proper evidence to inform care coincide with heightened pressures to reduce unsustainable health care costs. Health delivery system leaders are facing shrinking operating margins and pressure to do more with less, while at the same time contending with the resource- and knowledge-intensive demands of moving to value-based reimbursement approaches that emphasize population management.
From page 3...
... , which consists of clinical data research networks (CDRNs) , each spanning at least two health care delivery systems, and patient-­ powered research networks (PPRNs)
From page 4...
... By building clinical research into the health care process and by working directly with patients and their advocates, PCORnet will be able to provide the answers that patients need quickly, efficiently, and at lower costs than previously possible. (www.pcori.org)
From page 5...
... . The first workshop brought together health care system leaders, both administrative and clinical, and researchers, including those from CDRN and PPRN grantees, the NIH Health Systems Research Collaboratory, and the IOM Innovation Collaboratives, to identify and consider the issues and strategic priorities for facilitating progress toward sustainably integrating PCORnet into a continuously learning health care system, including issues related to science, technology, ethics, business, regulatory oversight, sustainability, and governance.
From page 6...
... A major premise that served as the foundation for the two workshops is that the continuous and seamless assessment of the effectiveness and efficiency of care is basic to a continuously learning and constantly improving health care system. Advancements in the digital infrastructure and the development of innovative methods for research and learning now make this aim achievable in health care, as it has already been achieved in many other sectors of the economy.
From page 7...
... PCORI is committed to active stakeholder engagement, and these two workshops were aimed, in particular, at informing and engaging health system leaders as essential partners in building the necessary and sustainable infrastructure to power a continuously learning health system. As Joe Selby, PCORI's executive director, said at the opening of the first workshop, "The entire premise of creating PCORnet is that it does make sense to engage health care systems, their clinicians, and their patients in a process of putting data together, standardizing it, and using it for quality improvement and clinical research." In his introductory remarks to the first workshop, IOM president Harvey Fineberg said that his hope is that the domains of medical practice and medical research will be seen not as parallel, independent enterprises, but rather as tightly integrated efforts.
From page 8...
... The Roundtable aims to meet this goal through stakeholder workshops and meetings designed to accelerate understanding and progress toward the vision of a continuously learning health system and through joint projects conducted by affinity-group Innovation Collaboratives focused on best clinical practices, clinical effectiveness research, the communication of medical evidence, digital technology for health, incentives for value in health care, and systems engineering for health improvement.
From page 9...
... Chapter 2 offers examples of organizations that are on the leading edge of integrating care delivery and research in a way that leads to greater efficiency, better value, and improved health care. Chapter 3 provides a brief introduction to the vision for a continuously learning health system, including a description of the value proposition for various constituencies, and Chapter 4 explores the business and financial issues and opportunities that arise as organizations move toward continuous learning and improvement.


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