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Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness (2015) / Chapter Skim
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Appendix A: Public Session Agendas
Pages 249-252

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From page 249...
... , Centers for Disease Control and Prevention 1  Presentation materials available by request through the National Academies Public Access Records Office, (202)  334-3543 or paro@nas.edu.
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From page 250...
...  Susan Maier, Deputy Director, Office of Research on Women's Health (ORWH) , Department of Health and Human Services 3:00-3:15 PM Break 3:15-3:45 PM The Voice of the Patient Report  of Program and Strategic Analysis/ Sara Eggers, Office Office of Strategic Programs, Center for Drug Evaluation and Research, Food and Drug Administration 3:45-4:45 PM Remarks from ME/CFS Advocates and Associations Adin Burroughs, Phoenix Rising Lori Chapo-Kroger, PANDORA Carol Head, CFIDS Association of America Pat LaRosa, New Jersey Chronic Fatigue Syndrome Association, Inc.
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From page 251...
... APPENDIX A 251 1:15-2:45 PM Patient and Advocate Panel: Challenges Faced by ME/CFS Patients When Interacting with the Health Care System Joseph Landson Denise and Matthew Lopez-Majano Robert Miller Annette Whittemore 2:45-3:15 PM Q and A from Committee 3:15-3:30 PM Break 3:30-4:00 PM Diagnostic Criteria Issues for ME/CFS  Professor, DePaul University, Director Leonard A Jason, of the Center for Community Research 4:00-4:10 PM Q and A from Committee 4:10-4:40 PM Sleep Disturbances in ME/CFS Akifumi Kishi, Postdoctoral Fellow in the Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine, New York University School of Medicine  4:40-4:50 PM Q and A from Committee 4:50-5:20 PM Neurocognitive Manifestations in ME/CFS Professor, Department of Physical Gudrun Lange, Medicine and Rehabilitation, Rutgers University-New Jersey Medical School 5:20-5:30 PM Q and A from Committee 5:30 PM Adjournment of Public Session Ellen Wright Clayton, Committee Chair
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  • public comment

  • adin burroughs
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  • national academies
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