Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness (2015) / Chapter Skim
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2 Background
2 Background
Pages 27-36
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From page 27... ...
.1 More recent efforts to develop diagnostic criteria for this condition(s) have used the term "ME/CFS" or "CFS/ME" (Carruthers and van de Sande, 1 The World Health Organization's International Classification of Diseases, Tenth Revision, can be accessed at http://apps.who.int/classifications/icd10/browse/2015/en (accessed February 13, 2015)
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In 1986, Dr. Ramsay published the first diagnostic criteria for ME, a condition characterized by a unique form of muscle fatigability whereby, even after a minor degree of physical effort, 3 or more days elapse before full muscle power is restored; extraordinary variability
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Chronic Fatigue Syndrome In the mid-1980s, two large outbreaks of an illness in Nevada and New York resembling mononucleosis attracted national attention. The illness was characterized by "chronic or recurrent debilitating fatigue and various combinations of other symptoms, including sore throat, lymph node pain and tenderness, headache, myalgia, and arthralgias" (Holmes et al., 1988, p. 387)
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Who in this over-wrought, stress-driven society isn't "fatigued" a good deal of the time? What people don't get is that this fatigue for people like me keeps me in bed for days at a time and prevents me from doing everyday errands and even simple house tasks on some days.6 In addition to difficult interactions with health care providers, patients have reported several other ways in which the stigmatization of ME/CFS affects them, including financial instability (such as job loss or demotion)
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. The duration of ME/CFS and the potentially debilitating consequences of symptoms can be an enormous burden for patients, their caregivers, the health care system, and society.
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Health Care Costs and Utilization Patients with ME/CFS spend considerably more on health care than the general medical patient population (Twemlow et al., 1997)
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Primary Health Care Research & De velopment 15(2)
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2010. The development of a revised Canadian myalgic encephalomyelitis chronic fatigue syndrome case definition.
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1977. Icelandic disease (benign myalgic encephalomyelitis or royal free disease)
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2014. The status of and future research into myalgic encephalomyelitis and chronic fatigue syndrome: The need of accurate diagnosis, objective assessment, and acknowledging biological and clinical subgroups.
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