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7 Reflections on the Workshop
Pages 95-100

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From page 95...
... To her, the presentations and discussion spoke to the part of health literacy that has to do with reducing demands on patients around navigating the health care system and coordinating care, as well as with addressing the matter of comprehension under difficult circumstances. "The model of care that we imagine for people with advanced illness is a health literate model," she said.
From page 96...
... Marin Allen from the Office of the Director of the National Institutes of Health voiced her concern that health literacy is thought of as a tactic mentioned along with education, rather than an integral part of the interaction between patient and the health care team, and that treating it as such will not provide the necessary cross-pollination across medical fields. She then added two footnotes.
From page 97...
... Terri Ann Parnell from Health Literacy Partners remarked that the presentations far exceeded her expectations, and she thought incorporating the thoughts of both the family and the spiritual community broadens the spectrum of the Roundtable's work. One of the strong points for her was the value of having health care providers taking time for self-reflection and looking for unconscious bias that enters into conversations with patients.
From page 98...
... Ruth Parker agreed that cost transparency was important. Indeed, she said that there is a wonderful opportunity to think about how to include discussions of cost in the conversation about palliative care, both in terms of how to have that conversation with caregivers as it relates to making choices about care options and with regard to health care costs in the United States.
From page 99...
... "Their voice reminds us that at the end of the day we are tending to the broken hearts of human beings." She then commented on Diane Meier's idea that integrative palliative care is about creating a medical counterculture given that the current system is not set up to work in a collaborative or integrated way. This is particularly true, she said, of dentistry, which worked hard historically to stay out of Medicare and remain separate from the health care system in general.
From page 100...
... He noted that he and Dana Lustbader will be able to take the lessons from this workshop and apply them to the work they are doing with the various advisory councils on which they serve. Rosof then asked Freeman to make the final comment on the day.


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