Mitochondrial Replacement Techniques Ethical, Social, and Policy Considerations (2016) / Chapter Skim
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Appendix C: Biosketches of Committee Members
Appendix C: Biosketches of Committee Members
Pages 177-184
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From page 177... ...
, is Robert Henry Levi and Ryda Hecht Levi professor of bioethics and public policy at the Johns Hopkins Berman Institute of Bioethics. He works in a variety of areas of bioethics, exploring the intersection of ethics and health and science policy, including human and animal research ethics, ethics and public health, and ethical issues in emerging biomedical technologies.
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From page 178... ...
He has also served on NIH's Structure and Function Study Section, on the Scientific and Medical Advisory Board of the United Mitochondrial Disease Foundation, and as co-chair of the Keystone meeting "Mitochondrial Dynamics and Physiology." Dr. Chan has received numerous awards in his academic career, including Howard Hughes Medical Institute Investigator, Mitochondrial Research Society Young Investigator, Ellison Medical Foundation Senior Scholar, Beckman Young Investigator, Rita Allen Foundation Scholar, and Bren Scholar.
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From page 179... ...
, the UNOS Ethics Committee, the Biomedical Ethics Advisory Committee, the NIH Recombinant DNA Advisory Committee, and several data and safety monitoring boards for NIH clinical trials. In 1996, President Clinton appointed him to the National Bioethics Advisory Commission.
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From page 180... ...
Falk established and directs the CHOP Mitochondrial-Genetics Diagnostic Clinic to aid in the evaluation and management of individuals of all ages with suspected mitochondrial disease. She is actively involved in developing improved diagnostic approaches and resources for mitochondrial disease, including organization of a global Mitochondrial Disease Sequence
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From page 181... ...
She is a member and former chair of the Scientific and Medical Advisory Board and former Board of Trustees member of the United Mitochondrial Disease Foundation; a member of the Scientific Advisory Board of the nonprofit Genesis Project; a founding member of the CHOP Center for Mitochondrial and Epigenomic Medicine; CHOP-site principal investigator for the North American Mitochondrial Disease Consortium; a member of the Mitochondrial Congressional Caucus, Mitochondrial Medicine Society, Mitochondrial Research Society, Society for Pediatric Research, Society of Inherited Metabolic Disease, and American Society of Human Genetics; and a fellow of the American College of Medical Genetics and Genomics. Jonathan Kimmelman, Ph.D., holds a doctorate in molecular biophysics and biochemistry from Yale University and is associate professor in biomedical ethics at McGill University, with a cross-appointment in experimental medicine.
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From page 182... ...
During the past decade, his research team has applied the new tools of genomics and systems biology to dissect the organelle's physiology in health and in disease. His team has characterized the mitochondrial proteome, identified transcriptional circuits controlling the organelle's biogenesis, discovered the molecular identity of the mitochondrial calcium uniporter, and identified more than one dozen Mendelian disease genes.
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From page 183... ...
Turning her advocacy and media skills to that issue, she participated in national medical policy panels; worked with then-House Democratic Leader Nancy Pelosi and Congresswoman Diana DeGette to urge Senate passage of the Stem Cell Research Enhancement Act; secured coverage of the issue on ABC's Nightline and in a Sunday New York Times Magazine cover story; authored "Vetoing Henry," a Washington Post op-ed criticizing President Bush's 2006 veto of federal funding for human embryonic stem cell research; and advocated for parental perspectives on NBC, the CBS Early Show, and MSNBC.
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From page 184... ...
At Princeton, Dr. Wailoo teaches on the history of race, drugs and drug policy, modern genetics and public policy, and a range of other topics in history and health policy.
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