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Currently Skimming:

5 Global Efforts to Include Children with Developmental Delays and Disabilities in Research and Policy Agendas
Pages 31-42

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From page 31...
... Preliminary findings showed that 33 percent of caregivers reported difficulties or delays in accessing care for their children because of cost; 24 percent of caregivers reported traveling more than 100 kilometers to receive a diagnosis for their child; and 21 percent of children ages 5 and older were not enrolled in school. The final report for this study is forthcoming.
From page 32...
... . SPECIAL NEEDS, SPECIAL RIGHTS Donald Wertlieb warned participants about the misleading notion of "margins,"2 stating that children with developmental delays and disabilities can be anywhere from 5 to 40 percent of a country's population.
From page 33...
... • European Agency for Special Needs and Inclusive Education's launch of the Early Childhood Education project that assesses the interface between early childhood interventions and primary education, and builds on the agency's projects from 2004 and 2010a • UNESCO (United Nations Educational, Scientific and Cultural Organization) has launched eLeSI -- e-Learning for Social Inclusion, with modules for children ages 0 to 3 and 4 to 16b • UNICEF will release Inclusive Early Childhood Development Guidance ­ UNICEF, ( 2014)
From page 34...
... EARLY CHILDHOOD INTERVENTION: GLOBAL SURVEY RESULTS Hollie Hix-Small defined early childhood interventions (ECIs) as interventions for children ages 0 to 3 or 5 who are living with disabilities or developmental delays,4 are malnourished, have low birth weight, or have chronic illnesses.
From page 35...
... The early interventionist works with the family within an ecological context and receives support from physical therapists, nutritionists, and speech and language pathologists, among other specialists. Hix-Small presented a global survey she conducted in partnership with Emily Vargas-Baron to understand the state of ECI around the world.5 The exploratory study aimed to document ECI services around the world, identify regional differences in programming, and make recommendations for developing and strengthening ECI systems.
From page 36...
... SOURCE: Hix-Small, 2015. Policy Makers Phased expansion Social Pilot services Health Welfare Training system Service tools, supervision, M&E prepared Screening system developed Education Training system implemented Training system designed Program regulations established ECI Vision & Policy Framework Intersectoral collaboration Practitioners FIGURE 5-1 ECI developmental pathway.
From page 37...
... While reports may indicate that Albania has a set of laws governing policy and service delivery for all children, Como stated that an enabling environment for early childhood development has not been streamlined. He said that limited mechanisms are in place to coordinate across sectors to provide services for the holistic development of children under the age of 6 years.
From page 38...
... Since inception, the ACF holds yearly intensive autism awareness campaigns spearheaded by parents of children with autism. In addition to training service providers, the organization publishes instructional materials and offers a 6-hour training guide for parents to care for their children and promote optimal development.
From page 39...
... In terms of health care and social protection, Dojcinovska said that laws in Macedonia provide for the early identification of children with disabilities, but that the country does not have an adequate strategy for early intervention. She did note that Macedonia has centers for social work; development counseling offices to monitor children born at risk of developing a developmental delay or disability; and speech therapists, psychologists, and physical therapists to diagnose and treat certain conditions.
From page 40...
... She also indicated Georgia has a sustainable funding system and a joint vision from several ministries regarding early child development, which has resulted in an annual increase in the number of children involved in ECI programs. A REGIONAL PERSPECTIVE ON PREVENTION Bettina Schwethelm provided UNICEF's strategies to address the complex needs of children with developmental delays and disabilities in Central and Eastern Europe and the Commonwealth of Independent States (CEE/CIS)
From page 41...
... Modules focus on developmental difficulties, attachment, stigma and discrimination, cross-sectorial coordination, and child maltreatment, among others. S ­ chwethelm stated that the home visiting service has been evaluated in Bosnia and Herzegovina and results showed a positive effect on child outcomes and parent–child relationships (Yousafzai and Rasheed, 2015)
From page 42...
... 42 REACHING AND INVESTING IN CHILDREN AT THE MARGINS ground and are not informed about the challenges families face on a daily basis. Finally, several participants thought a center-based model would not reach all children living in families.


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