Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs Proceedings of a Workshop (2016) / Chapter Skim
Currently Skimming:
4 Children with Serious Medical Conditions and the Behavioral Health Implications
4 Children with Serious Medical Conditions and the Behavioral Health Implications
Pages 23-36
The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.
From page 23... ...
would hold true for diverse conditions." The other two speakers looked more broadly at issues of social integration and care coordination for children with complex health needs. PEDIATRIC MEDICAL TRAUMATIC STRESS AND ITS IMPACT ON FAMILIES When children have a serious illness or condition, they tend to have developmentally shaped, emotional reactions such as anxiety, depression, or behavior problems, explained Anne Kazak, codirector of the Nemours Center for Healthcare Delivery Science, codirector of the Center for Pediatric Traumatic Stress at the Children's Hospital of Philadelphia and A.I.
|
From page 24... ...
Kazak focused on traumatic stress responses, which she described as a set of multiple psychological and physiological responses of children and their families to pain, injury, medical procedures, and invasive or frightening treatment experiences. Many aspects of illness and injury are stressful, but some are potentially traumatic, and traumatic stress and associated emotional reactions can have effects that seriously impair a child's or family member's functioning.
|
From page 25... ...
For example, across 6,500 administrations of the PAT, 55 percent of families were determined to need only universal supports, while 34 percent were determined to need targeted interventions and 11 percent were deemed to need clinical treatment. FIGURE 4-1 Some families have more resilient subjective reactions and appraisals of medical events, while others experience escalating, chronic, or gradually recovering levels of traumatic stress.
|
From page 26... ...
SOURCE: Reproduced with permission from the Center for Pediatric Traumatic Stress (CPTS) at Nemours Children's Health System ©2011.
|
From page 27... ...
In the domain of environmental and contextual factors, indoor allergens, outdoor allergens, pollution, and environmental stresses all influence pediatric asthma disparities. Within the health care system, insurance coverage and reimbursement practices affect asthma disparities, as do such factors of the system as provider cultural sensitivity, workforce diversity, the use of evidence-based care, workload, and available resources.
|
From page 28... ...
Everhart's work is centered on Richmond, Virginia, which "is one of the most challenging places to live if you have asthma," she said. The pediatric asthma hospitalization rate in Richmond is more than twice the overall Virginia average.
|
From page 29... ...
The Childhood Asthma in Richmond Families Study looked at children with persistent asthma and their caregivers in 61 families. Ninety percent were African American, 55 percent had yearly incomes below $19,000, and 82 percent of children had one or more emergency department visits in the previous year.
|
From page 30... ...
KIT was founded in 1997 when a woman who had polio left a large bequest to the Jewish Community Foundation in San Diego so that children with disabilities would be better served in the community. The foundation also hired a woman named Gayle Slate, the mother of a child with cerebral palsy who had experienced considerable exclusion, who was committed to including children with disabilities in their communities.
|
From page 31... ...
KIT uses a blended learning model, including live and online training, to teach and build capacity in child and community-based programs like preschools, summer camps, afterschool programs, sports leagues, and scouting. A team of highly skilled trainers delivers in-person training and classroom consultation.
|
From page 32... ...
It works with the U.S. Department of Education, the federally funded 21st Century Community Learning Centers programs, YMCAs, Boys and Girls Clubs, 4H Programs, and Girl Scouts.
|
From page 33... ...
Today, many physicians still send and receive information by fax machines, and medical record systems do not necessarily communicate with each other, much less with schools or other community resources. She noted As a pediatric rehabilitation medicine provider, I see my primary job as living solidly in a healthy neighborhood that makes connectivity happen.
|
From page 34... ...
A care manager can be in a primary care setting or a tertiary care setting. A medical home model is especially attractive because it can optimize services for children, especially if services are collocated, with behavioral health services, legal services, and social services nearby.
|
From page 35... ...
But success requires communication and coordination as well as dissemination. INSURANCE COVERAGE FOR CHILDREN WITH COMPLEX MEDICAL NEEDS A prominent topic that arose in the discussion session involved reimbursement for children with complex medical conditions.
|
From page 36... ...
As Houtrow said, people need to understand their roles and skill sets. "It often comes down to face-to-face communication so that people know what they're expected to do, what their shared responsibility is, and how they are achieving shared goals.
|
Key Terms
This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More
information on Chapter Skim is available.