Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs Proceedings of a Workshop (2016) / Chapter Skim
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8 Breakout Groups and the Reflections of Moderators
8 Breakout Groups and the Reflections of Moderators
Pages 71-78
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From page 71... ...
For example, the split within the federal government of research and mental health services "has caused serious problems," he said, "and it's time to reshape that." Integrating the two can both improve research and provide the best services possible, Brown said. Emily Lichvar of the Substance Abuse and Mental Health Services Administration (SAMHSA)
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From page 72... ...
In that case, to build capacity in communities to reduce risk and enhance access to care, multiple communities need to engage with children and families with disabilities, Kelleher and Lello reported. This requires ongoing education and resources for the members of these diverse communities, and particularly for those communities that do not usually engage with people affected by disabilities.
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From page 73... ...
"It's unusual for federal policy to lead; it usually follows," he observed. Intentionally tracking innovations at the local and state level therefore can be a valuable spur to policy change, even as broader efforts to change federal policy continue.
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From page 74... ...
People in the states want to make this happen for children and adolescents, but "it takes leadership at the federal level, and right now that's a big issue." As one way to improve cohesion, Stephen Shore pointed to the parent skills training that Autism Speaks supports in low-resource areas. This initiative takes a lot of time and effort, he said, but research on the efficacy of such programs might point in productive directions.
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From page 75... ...
" On the subject of coordination, Lichvar asked whether public schools are currently equipped "from an infrastructure perspective, or from a staffing perspective, to meet the needs of children with complex medical and health and mental health problems." Teachers are focused on trying to bring all of the 30 or more students in their classroom up to an adequate level on tests, and adding more responsibilities to their jobs may not be possible. "My brother is a third grade teacher," she said, "and he has 30 students in his class.
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From page 76... ...
"We need to get that to be something that is acceptable and legitimate to do -- and legal to do." McCabe similarly pointed out that many of the incentives in place today are based on an adult model and do not adequately recognize the importance of childhood and life course health development. As Shore observed, "primary care pediatrics is as close as we can come .
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From page 77... ...
BOX 8-1 Suggestions by Workshop Presenters for Future Actions In addition to the workshop participants who spoke in the final session, the speakers on previous panels expressed ideas that have implications for future actions. The following list recapitulates suggested actions from earlier in this Proceedings of a Workshop: • etter preparation of adolescents through education in health literacy B and self-management skills would improve the transition from pediatric to adult care.
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From page 78... ...
(Call) • ntroducing and supporting the components of interventions separately I can help change behaviors among care providers.
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