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1 Introduction and Overview of the Workshop
Pages 1-4

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From page 1...
... Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs.
From page 2...
... Another common theme was the challenges posed by transitions in care, whether because a family moves, a child becomes an adolescent or an adolescent becomes an adult, or a complex condition changes over time. Chapter 3 summarizes the keynote address by Maureen Durkin, a codirector of the Center for Pediatric Traumatic Stress at the Children's Hospital of Philadelphia and A.I.
From page 3...
... For example, the psychological and physiological responses of children and their families to pain, injury, medical procedures, and invasive or frightening treatment experiences can manifest as traumatic stress that can seriously impair a child's or family's functioning. Both community supports and family resilience can reduce the behavioral health consequences of serious medical conditions, but achieving these objectives requires coordination among systems that do not always work well together.

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