Human Genome Editing Science, Ethics, and Governance (2017) / Chapter Skim
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Appendix C: Data Sources and Methods
Appendix C: Data Sources and Methods
Pages 273-278
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From page 273... ...
To respond comprehensively to its charge, the committee examined data from a variety of sources, including a review of the literature, open-session meetings and conference calls, public testimony and input, and other publicly available resources. COMMITTEE COMPOSITION The National Academies of Sciences, Engineering, and Medicine (the National Academies)
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From page 274... ...
Although a separate ad hoc committee planned the summit, it provided a critical opportunity for the study committee to gather information. The summit convened experts from around the world to discuss scientific, ethical, and governance issues associated with human gene-editing research.1 1 The list of speakers at the International Summit included Peter Braude, Annelien Bredenoord, Philip Campbell, Alta Charo, George Church, Ralph Cicerone, Chad Cowan, George Daley,
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From page 275... ...
The committee also worked to make its activities as transparent and accessible as possible and to ac Marcy Darnovsky, Victor Dzau, Fola Esan, Barbara Evans, William Foster, Bärbel Friedrich, Hille Haker, John Harris, John Holdren, Rudolf Jaenisch, Weizhi Ji, Pierre Jouannet, J Keith Joung, Daniel Kevles, Jonathan Kimmelman, Eric Lander, Ephrat Levy-Lahad, Jinsong Li, Robin Lovell-Badge, Gary Marchant, Jennifer Merchant, Keymanthri Moodley, Indira Nath, Staffan Normark, Kyle Orwig, Pilar Ossorio, Duanquing Pei, Matthew Porteus, K
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From page 276... ...
Any information provided to the committee from outside sources or through the online comment tool is available by request through the National Academies' Public Access Records Office. Speakers The following individuals were invited speakers at data-gathering sessions of the committee: Roberto Andorno, University of Zurich Mónica López Barahona, Centro de Estudios Biosanitarios Pierre Bégué, Académie Nationale de Médecine, France Nick Bostrom, University of Oxford Abby Bronson, Parent Project Muscular Dystrophy Dominique Brossard, University of Wisconsin–Madison Jacqueline Chin, National University of Singapore Hans Clevers, Hubrecht Institute Ronald Cole-Turner, Pittsburgh Theological Seminary Francis Collins, National Institutes of Health George William Foster, Congressman, IL-11 Søren Holm, University of Manchester Rahman Jamal, National University of Malaysia Bartha Knoppers, McGill University Fredrik Lanner, Karolinska Institute James Lawford-Davies, Hempsons Law Firm, United Kingdom John Leonard, Intellia Therapeutics Bruce Lewenstein, Cornell University Andrew May, Caribou Biosciences Vic Myer, Editas Medicine Alondra Nelson, Columbia University Erik Parens, Hastings Center
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From page 277... ...
APPENDIX C 277 Guido Pennings, Ghent University, Belgium Pearl O'Rourke, Partners HealthCare Jackie Leach Scully, Newcastle University Oliver Semler, University of Cologne Trevor Thompson, Sickle Cell Foundation of Tennessee Anna Veiga, Center of Regenerative Medicine, Barcelona, Spain Thomas Voit, University College London Elizabeth Vroom, United Parent Projects Muscular Dystrophy Keith Wailoo, Princeton University Michael Werner, Alliance for Regenerative Medicine Nancy Wexler, Hereditary Disease Foundation Bethan Wolfenden, Bento Bioworks Carrie Wolinetz, National Institutes of Health Philip Yeske, United Mitochondrial Disease Foundation Xiaomei Zhai, Peking Union Medical College, China
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