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Integrating the Patient and Caregiver Voice into Serious Illness Care Proceedings of a Workshop (2017) / Chapter Skim
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Appendix B: Workshop Agenda
Pages 75-80

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From page 75...
... James Tulsky, MD, Harvard Medical School (Vice Chair)  Roundtable on Quality Care for People with Serious Illness Overview of the Workshop Rebecca Kirch, JD, National Patient Advocate Foundation JoAnne Reifsnyder, PhD, RN, Hospice and Palliative Nurses Association Planning Committee Co-Chairs 8:45 am Session 1: Integrating the Patient, Caregiver, and Family Voice into Person-Centered Care: Gaps, Challenges, and Opportunities  Moderator: Amy Berman, BSN, LHD, The John A
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From page 76...
... Bergamini, MD, Mercy Clinic Children's Cancer and Hematology, Supportive Care Coalition Addressing health equity and quality-of-life priorities and concerns experienced by patients and caregivers among geographically and ethnically diverse and vulnerable populations –  honta Chambers, MSW, Patient Advocate Foundation S Opportunities for addressing health disparities through chaplaincy/spiritual care services and support, including cultural humility/sensitivity –  ev. Alice Cabotaje, MDiv, BCC, ACPE, Massachusetts R General Hospital
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From page 77...
... APPENDIX B 77 Promoting dignity, quality of life, and health outcomes for underserved populations and addressing ethnicity and poverty effects on preferences and care –  tacy Fischer, MD, University of Colorado Denver S School of Medicine Identifying and honoring preferences in the context of reducing racial disparities -- addressing health disparities through improved communication and other strategies –  imberly Johnson, MD, Duke University School of K Medicine Panel Discussion, Audience Q & A 12:30 pm Lunch 1:20 pm Session 3: Integrating Person-Centered Care Across Ages, Diagnoses, and Disciplines  Moderator: Terry Altilio, LCSW, ACSW, Mount Sinai Beth Israel Medical Center Nurturing healthier connections between patients, caregivers, and clinicians through skilled communication emphasizing honesty, empathy, and hope –  nthony L Back, MD, University of Washington and A Fred Hutchinson Cancer Research Center Team-based prehabilitation and rehabilitation services integration as complement to palliative care and other supportive services focused on addressing patient and caregiver quality-of-life goals and priorities – Julie Silver, MD, Harvard Medical School
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From page 78...
... 78 PATIENT AND CAREGIVER VOICE IN SERIOUS ILLNESS CARE Special issues and needs in caring for seriously ill infants and their families, including identifying parent values and preferences in the context of perinatal and neonatal care and developing strategies for teams and a relationship-centered approach – Kathie Kobler, MS, APN, PCNS-B, CHPPN, FPCN,  Advocate Children's Hospital Opportunities for extending health system reach in addressing patient and family needs for spiritual and other care throughout the continuum using community-based chaplaincy and other services –  ev. Malcolm Marler, The University of Alabama at R Birmingham Panel Discussion, Audience Q & A 3:15 pm Break 3:45 pm Session 4: Innovations and Interventions to Support Communication of Needs, Values, and Preferences Moderator: Ellen Goodman, The Conversation Project Engaging communities in using tools to normalize quality of-life conversations and build patient connections that support improved decision making and help align care with values, preferences, and priorities of the patient, family, and caregiver – Nick Jehlen, Common Practice Community outreach to vulnerable populations in care planning and discussions; PREPARE website and tools –  ebecca Sudore, MD, University of California, San R Francisco, School of Medicine
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From page 79...
... APPENDIX B 79 Community-based research on health-related quality of life in complex chronic illness, rural health disparities, integrated palliative care –  oy Buck, PhD, RN, West Virginia University Health J Sciences Center  Findings and lessons learned from nationwide research on consumer preferences related to end-of-life care – Peter Mitchell, SalterMitchell Panel Discussion, Audience Q & A 5:15 pm Wrap-Up and Reflections on the Day Rebecca Kirch and JoAnne Reifsnyder Planning Committee Co-Chairs 5:30 pm Adjourn
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Key Terms

  • serious illness
  • health disparities
  • addressing health
  • advocate foundation
  • quality care

  • patient advocate
  • honta chambers
  • national patient
  • supportive care
  • rebecca kirch

  • care coalition
  • james tulsky
  • health equity
  • vulnerable populations
  • harvard medical

  • medical school
  • planning committee
  • care services
  • palliative nurses
  • including cultural

  • ethnically diverse
  • concerns experienced
  • alice cabotaje
  • amy berman
  • nurses association

  • joanne reifsnyder
  • family voice
  • vice chair
  • hartford foundation
  • mercy clinic


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