Aging and Disability Beyond Stereotypes to Inclusion: Proceedings of a Workshop (2018) / Chapter Skim
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2 Who Is Worthy of Choice?
2 Who Is Worthy of Choice?
Pages 7-16
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From page 7... ...
In her keynote presentation, Liz Jackson, the founder and chief advocacy officer for the Inclusive Fashion & Design Collective, focused on stereotypes in the design industry and the limitation in design choices, particularly for individuals with disabilities. Liz Jackson Inclusive Fashion & Design Collective Jackson began by comparing the worlds of aging and disability to cheeseburgers.
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Jackson noted that many people who could benefit from hearing aids opt not to use one because they are so expensive and stigmatizing. Furthermore, she said, hearing aid companies often create marketing campaigns each using the same word: discreet.
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"The thing is we need to stop assuming invisibility and, instead, making it a choice." For example, recent legislation will create a category of hearing aids that are considered consumer products rather than medical products, and she predicted that this will increase choice by increasing competition in the marketplace. Baby boomers are adding to the market every day, she continued: Richard Donovan, the CEO of the Return on Disability Group, reminds us that boomers are the ones who created the teenager.
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In both cases we have had to go back and slightly modify the wheelchair and what it came with. These conversations helped Jackson understand that choice requires more than opting in or opting out.
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ENGAGING PEOPLE WITH DISABILITIES IN THE DESIGN PROCESS Jackson suggested that many individuals with disabilities do not have access to traditional career paths due to access issues and prohibitive costs. She told the story of her friend Andrea who uses a wheelchair: 2 OnJuly 1, 2016, the IOM was reconstituted as the Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine.
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The 1997 IOM report Enabling America: Assessing the Role of Rehabilitation Science and Engineering called for consumers with potentially disabling conditions to be involved in research and technology development and dissemination. However, Jackson added, "I am not entirely sure that the National Academy of Sciences is fully aware of how game-changing our innovative solutions tend to be.
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John Auerbach with Trust for America's Health asked if there are good examples of companies or governmental organizations that have, in an authentic and meaningful way, involved individuals with disabilities. Jackson said there are a lot of great examples, but she said that she didn't want to say that one particular company did it "right" or did it "wrong." As an advocate, she said, she would find it difficult to name any company that got it exactly right in her eyes, because "I see it so specifically; I am always going to find that thing that I want them to improve." She said that it is better to focus on the idea that what everybody needs to be doing right now is approaching disability and aging "and really allowing us to drive the conversation and stop saying that something is done for us, and it is really with and by us." Charlotte Yeh of AARP Services, Inc.
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From page 14... ...
She noted, for example, that for people who are overly reactive to stimulation, companies can modify clothing through their choice of fabrics and construction, such as by eliminating seams. She also emphasized that the disability community does not have to be pitied and that collaborations between people with disabilities and the fashion industry can create "super-cool fashion." Margaret Campbell of Campbell & Associates Consulting noted that the National Institute on Disability, Independent Living, and Rehabilitation Research funded much of the research that created both the social model of disability and universal design principles.
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From page 15... ...
and then to purposefully look at the models (during the show)
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