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6 Where Do We Go from Here?
Pages 61-72

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From page 61...
... The panelists were Christopher Trudeau, assistant professor in the University of Arkansas for Medical Sciences' Center for Health Literacy, representing the legal sector; Lori Hall, director of health literacy at Eli Lilly and Company (Lilly) , providing a pharmaceutical industry perspective; Thomas Bauer, senior director of patient and family education at Johns Hopkins Health Centers, providing insights from the health care system perspective; Laurie Francis, executive director of Partnership Health Center, representing the federally qualified health center sector; and Lawrence Smith, dean of the Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, providing insights from the education and training sector.
From page 62...
... Trudeau, referring to Smith's comment about the importance of understanding the critical issues for executives, noted that compliance and risk Lori Hall, director of health literacy, Eli Lilly and Company; Thomas Bauer, senior director of patient and family education, Johns Hopkins Health Centers; Laurie Francis, executive director, Partnership Health Center; and Lawrence Smith, dean, Donald and Barbara Zucker School of Medicine, Hofstra/Northwell, and the statements are not endorsed or verified by the National Academies of Sciences, Engineering, and Medicine.
From page 63...
... Explanation of benefits, informed consent, and patient care plans all have a compliance aspect to them, and so from his perspective, tying health literacy to legal concerns could make a compelling case in the executive suite. He considers health literacy to be both sword and shield.
From page 64...
... A third executive, who is engaged with health literacy as a critical issue and is one of her supporters at the company, suggested that the field organize a health literacy forum for the pharmaceutical industry that would exist in the noncompetitive space to share ideas and data and stimulate research. Noonan, commenting on advertising that tells people who have taken a particular drug to call a legal team pursuing a class-action claim, asked Trudeau if the day was coming when a commercial would tell people who received a particular piece of patient education material that they could not understand or act on to call a law office.
From page 65...
... "It is not about a group of individuals that you could label. It affects everyone." These stories, he said, become powerful because they open the door to head and heart, and then it is possible to share statistics and talk about readmission rates, patient satisfaction, and reduced emergency department visit.
From page 66...
... Hall, who describes health literacy as a problem hiding in plain sight, liked leveraging the idea that implementing health literacy practices would allow health systems to stretch their dollars further. For pharmaceutical industry executives, a message that would resonate with them would be that health literacy could improve clinical trial awareness, increase enrollment of diverse populations in clinical trials, reduce adverse events, and improve medication adherence.
From page 67...
... Also needed are metrics that reflect the incorporation of changes in health literacy at the care team level and with respect to quality of care. Bauer joked that he is often asked how big his team is, and his answer is, "You are looking at it." In fact, though, he has an army working for him, a group of people who do a little bit across the organization, such as patient education teams at each of his health care system's hospitals and in each of its home health entities.
From page 68...
... At academic medical centers, regulations on informed consent are a big issue with a tie-in to health literacy. The common rule, for example, focuses on patient understanding of informed consent, and Trudeau believes it provides a legal construct for arguing about the importance of health literacy.
From page 69...
... Trudeau added that in that emergency department, patient satisfaction scores rose 40 percent and the staff became one of the most powerful proponents for his work. He noted that his current institution includes exposure to health literacy, social determinants of health, and health equity in the interprofessional training that all health professionals must take.
From page 70...
... Terry Davis from the Louisiana State University Health Sciences Center commented that, like Francis, she does not use the term "health literacy," believing it to be jargon just like "health activation," "health engagement," and "patient engagement." "I am not sure this is a term we want to ride on from now on," she said. Francis said that all this discussion is about improved health outcomes, maybe safety and equity, and about patientcentered, team-based care, where there is a natural role for health literacy to meet patients around their priorities.
From page 71...
... Today, when a health care professional activates a care plan, the EHR deploys a teaching plan with teaching points using health literate materials that support the patient. The next step will be to make it easier for patients to access that information themselves through the patient portal.
From page 72...
... His plan going forward is to have this group review the strategic plan he developed to make sure the members' perspective is included in the plan to ensure that efforts going forward are driven by a true partnership with the members of his health care organization. Francis wondered if the field should start asking what the role of health literacy is in health care and helping individuals improve their health and well-being, listening to the answers, and then identifying natural insertion points for health literacy.


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