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Appendix D: Newborn Screening Results Reporting Protocols for Sickle Cell Disease and Sickle Cell Trait
Pages 441-444

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From page 441...
... . Methods: APHL's Newborn Screening and Genetics Program in collaboration with the National Academies SCD committee developed a short survey that would gather information and provide an understanding of what occurs in SCD and SCT NBS results reporting.
From page 442...
... • One state NBS program provides SCT results to any university or organization that reaches out if properly authorized. Survey: Newborn Screening Results Reporting Protocols for Sickle Cell Disease and Trait Survey APHL received a data request from the National Academies SCD committee specifically on information on how NBS programs report screening results for SCD and SCT (i.e., follow-up processes)
From page 443...
...   6. What percent of babies who screen positive subsequently receive follow-up in 1 year?


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