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Addressing Sickle Cell Disease A Strategic Plan and Blueprint for Action (2020) / Chapter Skim
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Appendix M: Summary Table of Sickle Cell Trait Discussion in Report
Pages 489-490

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From page 489...
... 4 SCT health complications Future research needed for SCT Need for a national approach to SCT Conclusion 4-4 Recommendation 4-4 5 Services for individuals living with SCT Sickle Cell Disease Treatment Demonstration Program 6 Importance of using appropriate screening test Lack of quality indicators or consensus guidelines for genetic counseling Need for national reporting guidelines Committee proposed SCT core measures set 8 Relevant federal agencies involved with SCT activities Confusion between diagnoses of SCT and sickle cell disease Community-based organization services available for individuals living with SCT Public education and awareness about SCT 489
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Key Terms

  • cell disease
  • proposed sct
  • individuals living
  • reporting guidelines
  • treatment demonstration

  • demonstration program
  • sct activities
  • sct sickle
  • relevant federal
  • measures set

  • core measures
  • national reporting
  • services available
  • appropriate screening
  • sct core

  • using appropriate
  • disease treatment
  • agencies involved
  • organization services
  • screening test

  • committee proposed
  • genetic counseling
  • consensus guidelines
  • health complications
  • federal agencies

  • national approach
  • test lack
  • quality indicators
  • activities confusion
  • guidelines committee


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