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6 Applying the Framework to a New Data Set
Pages 97-108

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From page 97...
... USE CASE 2: ESTIMATING COSTS ASSOCIATED WITH A PRIMARY RESEARCH DATA SET The cost-forecasting framework is applied to a proposed State 1 (primary research) data platform.
From page 98...
... .g A Google data set search lists only epidemiology studies. The Human Connectome Projecth has a resting state fMRI longitudinal study under way, the Alzheimer's Disease Connectome Project, but the data will not be available for sev eral months.i She reads Alzheimer's studies in the literature and hopes that a few made data available or referenced public data sets.
From page 99...
... g The website for the 1000 Functional Connectomes Project is https://www.nitrc.org/projects/fcon_1000/, accessed April 15, 2020. h The website for The Human Connectome Project is http://www.humanconnectomeproject.org/, accessed April 15, 2020.
From page 100...
... The relative costs related to data acquisition for this use case are straightforward to predict using the costforecasting framework. Relative costs associated with cost drivers identified in Table 4.2 are provided below based on the assessment made while filling out Table 6.2.
From page 101...
... specialist, data scientist, data librarian, Considers documentation and curation levels required. metadata librarian, education specialist, policy specialist, research domain project manager, research domain curator, software engineer 5.
From page 102...
...  ow much metadata must be stored with the data to make them H M Requirements findable, accessible, interoperable, and reusable?  Basic descriptive metadata, imaging parameters, experimental metadata, > metadata processing metadata, anatomical metadata.
From page 103...
... A lower cost  Our imaging center provides primary storage.
From page 104...
...  hat types of access control are required for the data? W L  Human-subjects data -- institutional requirements for handling human > controls = subjects data followed.
From page 105...
... 2.  re there specific data retention institutional or regulatory A requirements for these data?
From page 106...
... 3.  ill data submission agreements be necessary?
From page 107...
... I  Yes. Neuroimaging Informatics Technology Initiative.
From page 108...
... Because an individual forecaster, in this case a primary research environment researcher, cannot be responsible for estimating all costs for data management in perpetuity, the goal in applying the forecasting framework should be to estimate costs incurred during data acquisition and stewardship while they are in the researcher's control (i.e., the costs incurred while data are in State 1)


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