Temporomandibular Disorders Priorities for Research and Care (2020) / Chapter Skim
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7 Improving Patient, Family, and Public Education and Awareness About TMDs
7 Improving Patient, Family, and Public Education and Awareness About TMDs
Pages 297-320
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From page 297... ...
Additionally, because orofacial pain and the symptoms potentially related to TMDs are experienced by a large number of individuals in the United States and g lobally, there is a need for raising awareness in the general public about these disorders and for providing accurate information and resources to help individuals cope with these conditions. As discussed in Chapter 6, 297
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Because the condition can often not be seen, patients may be viewed by family, friends, and even health professionals as malingerers or not having a "real" condition. • Raising awareness of the public and health care professionals: A public education campaign can educate the public and health care professionals about this complex condition.
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. Chronic and complex TMDs represent a form of chronic pain that can profoundly
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Practitioners may think that the chronic pain is imagined or exaggerated, leading patients to feel blamed, misled, or abandoned (De Ruddere and Craig, 2016)
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As well, most people understand pain through acute pain experience, which r esolves relatively rapidly over time. A survey of adults with chronic pain found that more than one-third experienced a sense of stigma in which they felt alienated, became socially withdrawn, or saw the legitimacy of their condition as being questioned (Waugh et al., 2014)
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. Various types of approaches have been implemented to overcome the stigma attached to these conditions, including patient education efforts, public awareness campaigns, professional education and training, involving celebrities and media champions, and policy change advocacy.
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. In discussing the costs of pain, especially chronic pain, the Institute of Medicine (IOM)
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The Diagnostic Criteria for Temporomandibular Disorders includes a pain map for paper administration, with separate sections for the oral cavity, face, and body (due to the associated required level of detail for each region)
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For example, in a study of veterans living with chronic pain, the benefits of participating in peer support groups were identified as making interpersonal connections, providing and receiving encouragement and support, and facilitating the use of pain self-management strategies (Matthias et al., 2016; see also the self-management section in Chapter 5)
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306 FIGURE 7-2 Examples of daily pain and activity logs.
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FIGURE 7-3 Headache pain map.
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. Although patient–clinician communication is generally thought of as a one-on-one encounter between the patient and clinician, there are also BOX 7-1 Improving Patient–Clinician Communication A critically important part of health professional education is learning how to ef fectively interact with patients, listen to their questions and concerns, and involve them in decision making.
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. In a study of more than 6,000 patients with atherosclerotic cardiovascular disease, researchers found a strong relationship between patient–clinician communication and improvements in outcomes, including the use of health care resources, health care costs (decreases in costs)
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. RAISING PUBLIC AWARENESS AND KNOWLEDGE ABOUT TMDs The 2011 IOM report on pain noted, "Currently, public education about pain is not conducted in a large-scale, systematic, coordinated, BOX 7-2 Basic Rights of Individuals with Chronic Pain The following basic rights have been identified by the American Chronic Pain Association for people with chronic pain.
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• Additionally, the 2011 IOM report included the following list of educational tools that are useful in reaching the public: o ebsite content, listservs, videos, and social media; w o sheets and leaflets distributed to target audiences and avail fact able at multiple locations, including schools, health facilities, workplaces, wellness classes, places of worship, and other public venues; o informational reports and studies; o signs at health facilities and in health professionals' offices; and o edia outreach including to television and movie scriptwriters. m One avenue for raising public awareness is through public education campaigns, which are often multimedia efforts to engage the general public and provide one or more key messages about the health condition, with links provided for those interested in further information.
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examined the content of 100 videos on YouTube that focused on TMDs and found that most of them provided some information on defining TMDs and many discussed treatments, but no assessment was done of the evidence-based quality of the information. Key Messages for the General Public The committee recognizes that public campaigns are costly and complex to mount, but it believes that the numbers of people with TMDs and the problems identified in seeking appropriate care warrant moving ahead
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. Some key messages to include in public messaging are noted below, but these should be augmented and refined by appropriate stakeholders, including patients, health care professionals, health agencies, and media groups.
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Inquire about different treatment options and self-care approaches. When symptoms are severe or have not been relieved with the initial treat ment, consider seeking care from health care professionals with spe cialty training in orofacial pain or in a dedicated multidisciplinary program for the treatment of orofacial pain.
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Conclusion 7-1: Building evidence-based communication resources will require attention to: • eveloping guidelines for the evaluation of communica D tion resources on temporomandibular disorders (TMDs) (including health literacy evaluations)
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REFERENCES ACPA (American Chronic Pain Association)
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2018. Patient experiences navigating chronic pain management in an integrated health care system: A qualitative investigation of women and men.
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2016. How do patients with chronic pain benefit from a peer-supported self-management intervention?
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2018. Conceptualizing pain related stigma in adolescent chronic pain: A literature review and preliminary focus group findings.
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