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Neuroscience Data in the Cloud Opportunities and Challenges: Proceedings of a Workshop (2020) / Chapter Skim
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6 Governing, Funding, and Sustaining Cloud-Based Platforms
Pages 37-42

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From page 37...
... . • Making governance rules and data use agreements available from institutions such as the National Institutes of Health, Harvard, and the Broad Institute; creating standard templates for data use agreements; or creating a clearinghouse of infor mation about governance and data use agreements could enable institutions to establish more harmonized rules to enable data sharing (Canet-Avilés, Marinshaw)
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From page 38...
... New policies need to be drafted for the next generation of data, he said, which will require coordination across new datasets such as those being generated by the various AMP initiatives, the All of Us research program,1 Sage Bionetworks, and others. Institutional policies around cloud and data governance are set primarily by chief information officers (CIOs)
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From page 39...
... ISSUES TO BE RESOLVED REGARDING DATA USE AND ACCESS, ANALYSIS, USER TRAINING, AND PLATFORMS SUSTAINABILITY Each institution sets its own rules, which hinders collaboration and efficiency, said Rosa Canet-Avilés, director of neuroscience research partnerships at FNIH. For example, one of the biggest obstacles to data sharing is that every institution requires researchers to obtain IRB and ethics approval even for data generated elsewhere, said Jane Roskams.
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From page 40...
... Valerie Virta, American Association for the Advancement of Science Science & Technology Policy Fellow at NIH, concurred, noting that NIH is poised to provide guidance that could be helpful to the community and help propagate best practices. Bringing a larger group of investigators and organizations together to share learnings on governance problems and solutions could be valuable, said Alyssa Picchini Schaffer, senior scientist at the Simons Foundation.
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From page 41...
... Most institutions currently require animal ethics and/or human ethics certification for ­ esearchers r working with animals or humans, noted Roskams. She suggested that it might also be helpful to require data ethics and data understanding certification.
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From page 42...
... Funding is not the only factor that affects sustainability, however. Sustaining the kind of cloud support engineer talent needed to support research projects has also proved challenging, according to Russell Poldrack and Weber.
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Key Terms

  • research participant
  • research participants
  • broad institute
  • cloud storage
  • data science

  • data governance
  • data user
  • data sharing
  • standard templates
  • creating standard

  • drug evaluation
  • philippakis added
  • science strategy
  • automated approach
  • neuroscience research

  • research computing
  • data involved
  • data understanding
  • integrating data
  • user research

  • controlled data
  • dbgap data
  • data generated
  • research purposes
  • letting research

  • data storage
  • genomic data
  • data move
  • regarding data
  • require data


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