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Planning for Long-Term Use of Biomedical Data Proceedings of a Workshop (2020) / Chapter Skim
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Appendix A: Workshop Agenda
Pages 63-66

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From page 63...
... A Workshop Agenda National Academy of Sciences Building Washington, DC Thursday, July 11, 2019 8:30 a.m. Welcome and Introductory Remarks David Chu, Institute for Defense Analyses, Study Committee Chair Tyler Kloefkorn, National Academies of Sciences, Engineering, and Medicine Sammantha Magsino, National Academies 8:45 Sponsor Expectations Patricia Flatley Brennan, National Library of Medicine 9:00 The Burdens and Benefits of "Long-Tail" Data Sharing Adam Ferguson, University of California, San Francisco 10:00 Break 10:20 Panel Discussion: Researchers' Perspectives -- Managing Risks and Forecasting Costs for Long-Term Data Preservation 63
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From page 64...
... Lunch 1:30 Breakout Sessions -- Tools and Practices That NLM Could Use to Help Researchers and Funders Better Integrate Risk Management Practices and Considerations into Data Pres ervation, Archiving, and Accessing Decisions Session 1-A Session 1-B Session 1-C Mechanisms for Mechanisms for Mechanisms for Forecasting the Identifying Risk Identifying the Costs Costs of Maintained and Cost Factors of of Making Data Truly Privacy Research Data in the Findable Cloud Moderator: Moderator: Moderator: Michelle Meyer Dave Maier Bill Stead Rapporteur: Rapporteur: Rapporteur: Lars Vilhuber Ilkay Altintas Maggie Levenstein 2:30 Break 2:45 Report on Breakout Sessions
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From page 65...
... 4:45 Open Discussion -- Reflections, Plans for Day 2, Coordination with Study Alexa McCray, Harvard Medical School, Study Committee Member 5:15 Adjourn for the Day Friday, July 12, 2019 8:30 a.m. Introductory Remarks Alexa McCray, Harvard Medical School, Study Committee Member 8:40 Panel Discussion: Incentives, Mechanisms, and Practices for Improved Awareness of Cost Consequences in Data Decisions Moderator: Lars Vilhuber, Cornell University, Study Committee Member Panelists: John Chodacki, University of California Curation Center, California Digital Library Melissa Cragin, San Diego Supercomputer Center Wendy Nilsen, National Science Foundation Lucy Ofiesh, Center for Open Science 10:00 Breakout Sessions -- Methods to Encourage NIH-funded Researchers to Consider, Update, and Track Lifetime Data Costs
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From page 66...
... 66 PLANNING FOR LONG-TERM USE OF BIOMEDICAL DATA Session 2-A Session 2-B Session 2-C Connecting the Dots: Practices for Using Incentivizing Planning Tools for Biomedical Data Researchers to Data Support and Knowledge Networks Determine the Costs Research Computing for Life-cycle Cost of Interoperability Forecasting and Updating Moderator: Moderator: Moderator: Ilkay Altintas Cliff Lynch Bill Stead Rapporteur: Rapporteur: Rapporteur: Dave Maier Lars Vilhuber Chuck Manski 11:00 Break 11:15 Report on Breakout Sessions 11:30 Panel Discussion: Researchers' Perspectives -- Reflections and Next Steps Moderator: Margaret Levenstein, University of Michigan, Study Committee Member Panelists: Nuno Bandeira, University of California, San Diego Jessie Tenenbaum, Duke University, North Carolina Department of Health and Human Services Georgia Tourassi, Oak Ridge National Laboratory Robert Williams, University of Tennessee Health Science Center 12:20 p.m. Closing Remarks -- Themes and Opportunities Maryann Martone, University of California, San Diego; Study Committee Member 12:30 Adjourn Workshop
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Key Terms

  • lars vilhuber
  • dave maier
  • bill stead
  • ilkay altintas
  • michelle meyer

  • identifying risk
  • curation center
  • john chodacki
  • california digital
  • diego supercomputer

  • maggie levenstein
  • supercomputer center
  • alexa mccray
  • melissa cragin
  • digital library

  • wendy nilsen
  • california curation
  • study committee
  • san diego
  • breakout sessions

  • harvard medical
  • medical school
  • introductory remarks
  • data decisions
  • risk management

  • improved awareness
  • accessing decisions
  • truly privacy
  • management practices
  • track lifetime


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