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Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers A Way Forward (2021) / Chapter Skim
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Appendix B: Public Meeting Agendas
Pages 187-194

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From page 187...
... •  larify issues identified by the committee and seek C answers to questions. •  iscuss report audience.
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From page 188...
... Speakers above, plus additional discussants from NIA: Marie A Bernard, Deputy Director John Haaga, Director, Division of Behavioral and Social Research Elena Fazio, Health Scientist Administrator, Division of Behavioral and Social Research Melinda Kelley, Director, Office of Legislation, Policy, and International Activities 11:50 am Lunch 12:45 pm Key Themes from the 2017 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers Laura Gitlin, Dean, College of Nursing and Health Professions, Drexel University 1:00 pm Perspective of a Person Living with Dementia Mary Radnofsky, Dementia rights advocate 1:15 pm Discussion About the Systematic Review Key Questions and Scope Objective: Discussion among NIA, EPC, and the committee about the draft systematic review key questions and scope, and about the EPC's questions for the committee.
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From page 189...
... Richard Hodes, Marie A Bernard, John Haaga, Elena Fazio, and Melinda Kelley, NIA Mary Butler and Joseph Gaugler, Minnesota EPC 11:30 am Adjourn Day Two Open Session Open Session: February 4, 2019 4:00 pm Welcome and Opening Remarks Eric Larson, Committee Chair 4:05 pm Overview of EPC Draft Protocol and Questions for the Committee Mary Butler and Joseph Gaugler, Minnesota EPC 4:15 pm Discussion moderated by Eric Larson, Committee Chair 6:00 pm Adjourn
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From page 190...
... R •  iscuss care interventions and outcomes that are of most interest D to people living with dementia and their caregivers. 10:00 am Welcome and Overview of Workshop Objectives Eric Larson, Kaiser Permanente Washington Health Research Institute, Committee Chair 10:10 am Background and Overview of the Committee's Charge Richard Hodes, NIA 10:25 am Overview of the Draft AHRQ/EPC Systematic Review Mary Butler, Minnesota EPC Joseph Gaugler, Minnesota EPC 10:45 am Discussion with Committee Members 11:30 am Perspectives from a Caregiver: What Care Interventions and Outcomes Are Most Important?
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From page 191...
... P 12:30 pm Session Objectives Jason Karlawish, University of Pennsylvania, committee member and session moderator 12:35 pm Panel 1: Perspectives from Advocacy Organizations and Associations Moderated discussion with: Lynn Feinberg, AARP Kathleen Kelly, Family Caregiving Alliance Douglas Pace, Alzheimer's Association 1:10 pm Discussion with Committee Members 1:30 pm Panel II: Perspectives from Care Systems and Payers Moderated discussion with: Patrick Courneya, HealthPartners David Gifford, American Health Care Association Shari Ling, Centers for Medicare & Medicaid Services Lewis Sandy, UnitedHealth Group 2:10 pm Discussion with Committee Members 2:30 pm Panel III: Perspectives from Implementation Science Moderated discussion with: Laura Gitlin, Drexel University Melissa Simon, Northwestern University 3:00 pm Discussion with Committee Members 3:20 pm Break
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From page 192...
... •  iscuss emerging data on care interventions that did not meet the D evidentiary standard of the systematic review and data expected from studies under way that were not published in time for inclusion in the systematic review, and identify gaps and areas for future research. 3:30 pm Session Objectives XinQi Dong, Rutgers University, committee member and session moderator 3:35 pm Interventions for People with Dementia Linda Teri, University of Washington 3:45 pm Interventions for Caregivers and Care Delivery Interventions Richard Schulz, University of Pittsburgh 3:55 pm Cultural Modifications J
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From page 193...
...  Cynthia Huling Hummel, living with dementia, Elmira, New York Karen Love, Dementia Action Alliance  Maria Martinez Israelite, care partner, Washington, DC  John Richard (JR) Pagan, living with dementia, Woodbridge, Virginia  Brian Van Buren, living with dementia, Charlotte, North Carolina Geraldine Woolfolk, care partner, Oakland, California 3:00 pm Discussion with Committee Members 3:15 pm Adjourn Open Session Open Session: September 16, 2020 Open meeting objective: Receive an overview from the Minnesota EPC about changes from the draft to the final AHRQ systematic review.
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From page 194...
... 194 CARING FOR PERSONS LIVING WITH DEMENTIA 11:00 am Welcome and Meeting Objectives Eric Larson, Kaiser Permanente Washington Health Research Institute, Committee Chair 11:05 am Overview of Changes from the Draft to the Final AHRQ Systematic Review Mary Butler, Minnesota EPC Joseph Gaugler, Minnesota EPC 11:20 am Discussion with Committee Members 12:00 pm Adjourn Open Session
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Key Terms

  • minnesota epc
  • mary butler
  • care interventions
  • review key
  • draft systematic

  • committee chair
  • eric larson
  • joseph gaugler
  • academies committee
  • health scientist

  • ahrq systematic
  • richard hodes
  • scientist administrator
  • melinda kelley
  • final ahrq

  • key questions
  • evidentiary standard
  • iscuss emerging
  • people living
  • dementia rights

  • iscuss care
  • iscuss report
  • advocacy organizations
  • care association
  • emerging data

  • care partner
  • identify gaps
  • epc systematic
  • session adjourns
  • american health


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