Reducing the Impact of Dementia in America A Decadal Survey of the Behavioral and Social Sciences (2021) / Chapter Skim
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9 Ten-Year Research Priorities
9 Ten-Year Research Priorities
Pages 263-274
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From page 263... ...
The committee was charged with developing a 10-year research agenda for the social and behavioral sciences to meet the goal of reducing the overall negative impact of dementia. To develop this agenda, we examined the landscape of dementia and dementia care from multiple perspectives and considered diverse types of impacts.
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From page 264... ...
The committee envisioned a world that better supports people living with dementia because of research conducted over the coming decade, and in which the development of interventions and policies is based on improved understanding and corresponds to what matters to those living with dementia. We identified research opportunities, outlined below, that are ripe for development in each of these areas.
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From page 265... ...
• Continued progress in data collection and research methods. Ways to facilitate the development of communities that support people living with dementia and caregivers, allow those with dementia to live independently for as long as possible, maintain social connections, and mitigate the negative effects of past and current socioeconomic and environmental stressors (Conclusion 5-1)
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From page 266... ...
• Development and evaluation of standardized systems of coordi nated care for comprehensively managing multiple comorbidities for persons with dementia. • Identification of effective approaches for integrating and coordinat ing care services across health care delivery and community-based organizations.
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From page 267... ...
Recognizing that resources are finite, the committee focused on critical areas of study to ensure that research undertaken in the next 10 years will contribute more than the sum of its parts. These priorities emerged from themes laid out throughout this report and can be used to structure funding for a research agenda that addresses the full range of negative impacts of dementia, and to guide
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From page 268... ...
Table 9-1 shows how specific research priorities identified in Chapters 2 through 8 correspond to these five broad priorities. In addition to these broad priorities, we offer guidelines for the design of an effective portfolio of research.
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From page 269... ...
TEN-YEAR RESEARCH PRIORITIES 269 TABLE 9-1 Priorities for a 10-Year Research Agenda Research Priority Research Conclusions 1: Improving the Lives of People Touched by Dementia 2-1 3-1 3-2 4-1 5-1 6-1 6-2 6-3 2: Rectifying Inequities and Disparities 2-1 3-2 4-1 5-1 6-1 7-1 3: Developing Innovations 3-1 3-2 4-1 5-1 6-1 6-2 6-3 4: Easing and Balancing Costs 6-3 7-1 5: Pursuing Advances in Research Capability 2-1 3-2 4-1 8-1 CONCLUSION 9-2: A 10-year research agenda will be optimally effec tive if it • is coordinated to ensure that the various research topics identified in this report are addressed sufficiently without redundancy and competing initiatives; • consistently takes into account fundamental socioeconomic factors that influence who develops dementia, access to high-quality care, and outcomes; • includes pragmatic, implementation, and dissemination research needed to ensure that findings can be implemented effectively in clinical and community settings; and • addresses potential policy implications that are articulated begin ning in the planning stages and assessed during the course of the investigations.
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From page 270... ...
This research agenda defines goals and priorities for the vital task of supporting better lives for people with dementia and caregivers, but its existence alone will not be sufficient: action is needed to ensure that the United States benefits from the potential in this body of research. To this end, the committee makes the following recommendation: RECOMMENDATION 9-1: Funders of dementia-related research, including federal agencies, such as the National Institutes of Health and the Agency for Healthcare Research and Quality, along with relevant philanthropic and other organizations, such as the Patient-Centered Outcomes Research Institute, should use guidelines for the awarding of research grants to establish incentives for • coordination of research objectives with the research agenda pri orities identified in this report to ensure that key areas are funded without undue overlap and to foster links across research efforts; • interdisciplinary research and inclusion of stakeholders in research partnerships; • attention to topics that have not typically been part of standard medical research but are important to those living with dementia, including isolation, financial security, and housing options; • rigorous evaluation and implementation research needed to trans late findings into programs with impact on a broad scale; and • dissemination of research findings to policy makers.
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From page 271... ...
On the contrary, this new treatment will not diminish the pressing need for the research described in this report. Indeed, the FDA's action illustrates many of the research challenges and needs facing the field of dementia research discussed in this report, and could affect responses to the research agenda we have laid out.
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From page 272... ...
The approval process for this drug raises additional policy questions, highlighting the need for a sound and ethical drug approval process that evaluates the appropriate role of scientific evidence, advocacy, economic interests, and politics. Social and behavioral science research can help improve safeguards to provide Americans with access to effective and safe medications.
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From page 273... ...
Scrupulous reliance on evidence is the foundation on which society can protect and improve the public health of the nation. It is our hope that by identifying these priorities for social and behavioral science research and making recommendations for how they can be pursued in a coordinated fashion, this report will help produce research that improves the lives of everyone affected by dementia.
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