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Building Data Capacity for Patient-Centered Outcomes Research Interim Report 1 - Looking Ahead at Data Needs (2021) / Chapter Skim
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Appendix B: Workshop Agenda
Pages 63-66

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From page 63...
... • Discuss what HHS is best positioned to address and how the agency could maximize resources available for the PCOR data infrastructure (representing 4% of the PCOR trust fund) , in the context of the HHS public mission, authorities, programs, and data resources.
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From page 64...
... Smith, Director, Division of Healthcare Quality and Outcomes, ASPE 11:30 am-1:00 pm EDT PCOR Data Infrastructure Limitations and Opportunities: Disparities and Health Equity Research Discussion questions: •  What are the limitations of the PCOR data infrastructure in terms of: o  disparities in the data, including knowledge about patient outcomes, taking into consid eration differences in patient preferences and values o  challenges associated with using the data to understand disparities and health equity o  lack of data on some populations •  What are opportunities and priorities for enhancing data capacity in this area? •  What data capacity challenges is HHS best positioned to address in the context of their public mission, authorities, programs, and data resources?
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From page 65...
... Moderator: Angela Dobes, Crohn's & Colitis Foundation Speakers: Rebekah Angove, Patient Advocate Foundation Gary Epstein-Lubow, Brown University Elisabeth Oehrlein, National Health Council Bray Patrick-Lake, Evidation Health
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From page 66...
... Moderator: Elizabeth McGlynn, Kaiser Permanente Research  Speakers: Andrew Bazemore, American Board of Family Medicine Robert Califf, Verily David Cella, Northwestern University Giselle Corbie-Smith, University of North Carolina Scott Ramsey, Fred Hutch Kurt Stange, Case Western Reserve University 4:55-5:00 pm EDT Wrap-up George Isham (Committee Chair) HealthPartners Institute
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Key Terms

  • data infrastructure
  • data capacity
  • current pcor
  • statutory scope
  • public mission

  • infrastructure limitations
  • capacity challenges
  • george isham
  • pcor trust
  • enhancing data

  • health council
  • hhs public
  • western reserve
  • elisabeth oehrlein
  • healthcare quality

  • trust fund
  • advocate foundation
  • maximize resources
  • data resources
  • joynt maddox

  • rebekah angove
  • broadened statutory
  • kurt stange
  • committee chair
  • patient advocate

  • karen joynt
  • health equity
  • understand disparities
  • discuss implications
  • data sources


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