Realizing the Promise of Equity in the Organ Transplantation System (2022) / Chapter Skim
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Appendix A: Public Meeting Agendas
Appendix A: Public Meeting Agendas
Pages 225-238
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From page 225... ...
• Discuss report audience and expected products. Jonah Odim, Section Chief, Clinical Transplantation Section, NIAID Discussants: • Neil Aggarwal, Branch Chief, Lung Biology and Disease Branch, NHLBI • Kevin Abbott, Program Director, Division of Kidney, Urologic, and Hematologic Diseases, NIDDK • Afshin Parsa, Program Director, Division of Kidney, Urologic, and Hematologic Diseases, NIDDK 225
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Kizer, Committee Chair Chief Healthcare Transformation Officer Senior Executive Vice President Atlas Research SESSION I BIOETHICAL CONSIDERATIONS OF FAIRNESS, EQUITY, AND TRANSPARENCY Session Chair: Kenneth W
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THE U.S. ORGAN PROCUREMENT SYSTEM Session Chair: Sue Dunn, Committee Member Session Objectives: • Discuss OPO processes and systems that ensure fairness and equity in organ donation.
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From page 228... ...
SESSION III. TRANSPLANT CENTER OPERATIONS AND ORGAN ACCEPTANCE DECISIONS Session Chair: Leigh Anne Dageforde, Committee Member Session Objective: Discuss the opportunities and challenges facing trans plant centers, and explore what is working and not working in terms of accessing organs, considering organ offers, managing waiting lists, and optimizing the use of available organs.
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From page 229... ...
The Role of Modeling in Proposed Organ Allocation Policy Changes David Mulligan President, Organ Procurement and Transplantation Network/United Network for Organ Sharing Professor of Surgery (Transplant) ; Section Chief, Transplantation Surgery and Immunology Yale University 2:15 p.m.
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Kizer, Committee Chair Chief Healthcare Transformation Officer Senior Executive Vice President Atlas Research 4:00 p.m. Adjourn Workshop Day 1 DAY 2: Friday, February 5, 2021 10:00 a.m.
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SESSION VII. DECEASED DONOR FAMILY PERSPECTIVES Session Chair: Charles Bearden, Committee Member Session Objective: Receive the perspectives of family members of deceased organ donors.
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Kizer, Committee Chair Panelists: Alexis Conell Member, Community Advisory Council APOLLO Research Study Hala Durrah Patient Family Engagement Consultant and Advocate, and Parent of a Liver Transplant Recipient Richard Knight President American Association of Kidney Patients Transplant Recipient Robert Montgomery Chair, Department of Surgery NYU Langone Transplant Institute 1:40 p.m. Discussion with Committee (20 mins)
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From page 233... ...
Welcome and Introduction Kenneth W Kizer, Committee Chair Chief Healthcare Transformation Officer Senior Executive Vice President Atlas Research SESSION I: INTERNATIONAL EXAMPLES OF ORGAN PROCUREMENT, ALLOCATION, AND DISTRIBUTION Session Objectives: • Discuss lessons the United States can learn from global transplant lead ers about more efficient distribution, increased use, and more equitable allocation of deceased donor organs.
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• Use: How are deceased donor organs determined as acceptable to use in your country? Do individual physicians and hospitals consider organ offers individually for each patient?
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SESSION II: EXPLORING DISPARITIES AND INEQUITIES IN PATIENT REFERRAL, EVALUATION, AND WAITING LIST MANAGEMENT PRACTICES Session Objectives: • Examine how patients get referred to organ transplant specialists, evalu ated by specialists, and placed on a waiting list for a deceased donor organ. • Explore the areas along this clinical pathway where barriers and biases exist, and discuss possible solutions to making the process more equitable.
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Kizer, Committee Chair Chief Healthcare Transformation Officer Senior Executive Vice President Atlas Research VIRTUAL PUBLIC LISTENING SESSION Thursday, July 15, 2021 11:00 a.m. Welcome and Introductions Kenneth W
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Osama Gaber, Chair, Houston Methodist Department of Surgery and Incoming President, American Society of Transplant Surgeons • Michele Bratcher Goodwin, Director, Center for Biotechnology and Global Health Policy, University of California, Irvine School of Law • Paul Myoung, Senior Administrative Director, Massachusetts General Hospital • Howard Nathan, President, Gift of Life Donor Program • Marty Sellers, Associate Professor of Surgery, Emory University; Asso ciate Medical Director, LifeLink • Janice Starling, Founder, All Kidney Patients Support Group
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From page 238... ...
• Jennifer Erickson, Innovation Fellow, Federation of American Scientists • Richard Formica, Past President, American Society of Transplantation • Kevin Fowler, Consultant, The Voice of the Patient, Inc. • Kevin Longino, CEO, National Kidney Foundation • Jerold Mande, Visiting Fellow, Tisch College of Civic Life, Tufts University • Melissa McQueen, Transplant Families • Patti Niles, CEO, Southwest Transplant Alliance • Velma Scantlebury, Professor of Surgery, University of North Texas Health Science Center • Quin Taylor, Founder, Tayloring Gratitude • Janice Whaley, President and CEO, Donor Network West 3:00 p.m.
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