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Building Data Capacity for Patient-Centered Outcomes Research Interim Report 3 - A Comprehensive Ecosystem for PCOR (2022) / Chapter Skim
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5 Public-Private Partnerships
Pages 51-56

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From page 51...
... Butte noted that initially the UC Health data are identifiable, and include geographic location, such as home address, as this information is needed for ensuring and improving the quality of medical care delivered. The address information can be linked to indices such as the Area Deprivation Index, Social Vulnerability Index, and the California Healthy Places Index, and contributes to an emerging understanding of social determinants of health.
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From page 52...
... Mor noted that COVID-19 has disproportionately affected long-term care residents, and the need for rich real-time data on nursing homes quickly became evident at the beginning of the pandemic. To respond to this need, Mor and his colleagues partnered with Genesis Health Care to obtain real-time data, and later expanded collaborations with the American Healthcare Association, Acumen LLC, and Exponent to build a data repository involving a broader range of nursing homes that have electronic medical records.
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From page 53...
... The resulting nursing home data-sharing collaborative now serves as the b ­ asis for several new studies, including randomized controlled trials, an analysis of vaccine effectiveness, and tracking breakthrough infections. Mor noted that the American Health Care Association, an industry association, played an important role in recruiting providers and negotiating agreements.
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From page 54...
... For example, despite recent regulations focused on price transparency, it is still not possible to compare costs across health care providers. Participants also discussed ways of overcoming resistance to data sharing.
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From page 55...
... Successful data sharing agreements can be established when these factors are taken into consideration. CONCLUSION 5-1: Successful partnerships across health care systems require participant trust, clear evidence of mutual benefit, and the abil ity to control risk.
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