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Appendix C: Biographical Sketches of Panel Members and Staff
Pages 144-147

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From page 144...
... The 2020 Pennsylvania LGBT Health Needs Assessment,4 a biannual community-based survey using convenience sampling that was conducted in a partnership between the Pennsylvania Department of Health and the Bradbury-Sullivan LGBT Community Center, included an intersex status question. This question was also based on a simplified version of the first GenIUSS question: "Were you born intersex, or with a variation of sex characteristics or sex development?
From page 145...
... The panel also valued an intersex status question as one that accurately assesses a person's naturally developed sex variation rather than gender identity, while acknowledging that people with sex variations may also assert intersex as a gender identity (Rosenwohl-Mack et al., 2020)
From page 146...
... Both options 2 and 3 are modified versions of GenIUSS group recommendations and effectively divide into two parts the questions that were tested in intersex communities. A version of each bifurcation was tested in population-based surveys of the Center for American Progress and Pennsylvania LGBT Health Needs Assessment: while positive responses rates varied substantially in ways that were difficult to assess given differences among the survey populations, nonresponse rates for both questions were low.
From page 147...
... RECOMMENDATION 7: To improve the quality and inclusivity of current measures of intersex status, the National Institutes of Health should fund and conduct research on the following topics: • The use of a single-item intersex/DSD status question. • The quality of the three measures of intersex/DSD status that were identified by the panel as having the strongest grounding in evidence to determine which measure most effectively identifies the intersex/DSD population in a range of settings.


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