Improving Consent and Response in Longitudinal Studies of Aging Proceedings of a Workshop (2022) / Chapter Skim
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3 Participation
3 Participation
Pages 31-48
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From page 31... ...
Michael Davern chaired the first session on M aximizing Respondent Retention, and Sunita Sah chaired the second session on Partici pant Engagement: Insights from Behavioral Science Research. MAXIMIZING RESPONDENT RETENTION Maximizing Response: The HILDA Survey Experience Nicole Watson, a survey methodologist and associate professor at the Melbourne Institute within the University of Melbourne, has worked on the Household, Income and Labor Dynamics in Australia (HILDA)
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From page 32... ...
Hard-to-get survey respondents were found to be distinctly different from the easy-to-get cases; however, 80 to 90 percent of those hard-to-get cases are easy to get in the next wave. Watson said that they could curtail the fieldwork without noticeably affecting the population estimates if they kept the number of calls to households to 12, and the biases that were introduced by doing that could FIGURE 3-1 Proportion of previous wave respondents who were re-interviewed at each wave shown separately by age group.
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From page 33... ...
However, there were impacts on population estimates and estimates of change that were not well addressed by weighting. Watson described another study that looked at how to re-engage previous wave nonrespondents using the HILDA Survey together with the British Household Panel Survey and the German Socioeconomic Panel.
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From page 34... ...
They also have standardized assessments of academic achievement and cognitive skill in adolescence, which lets them evaluate the relationship between prior cognitive skills and attrition, a process especially relevant for studies designed to understand cognitive change, cognitive decline, onset of Alzheimer's, and Alzheimer's disease-related dementias. Grodsky said that the target population for HS&B was students en rolled in 10th or 12th grades in the United States in the 1979–1980 school years, so they were born between 1961 and 1964.
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From page 35... ...
Students who reported earning lower grades in high school were less likely to respond to the survey 35 years later, with the difference between those reporting earning A's responding 6 percentage points higher than those reporting earning B's and C's, and 16 percentage points higher than those who reported earning D's or below. Math test scores predicted participating in the survey at mid-life with each standard deviation increase in math test scores associated with about a 6 percentage point increase in the probability of response.
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From page 36... ...
Instead, they devote a large part of the data collection effort to pre-field locating efforts in which they email, mail, and call sample members to alert them of the upcoming study with the goal of learning where they are, updating contact information, and approaching them about the study that will begin in a few months. An additional level of effort individually searches for panel members using property searches and Accurint.
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From page 37... ...
The study participants are currently in their early 80s, so Herd emphasized that she is talking about retention in a life course longitudinal panel, especially for much older samples. Herd noted that WLS response rates over time have been about 80 to 90 percent, with higher response rates among the primary graduates and slightly lower response rates among the siblings.
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From page 38... ...
This has implications for studying dementia and cognitive change in later life, Herd said, but having baseline data can help adjust for nonresponse bias. Herd also highlighted the challenges of doing phone interviews and trying to assess cognition and hearing decline much later in life, because by the time people are in their 70s and early 80s, these conditions are fairly prevalent.
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From page 39... ...
Grodsky concurred with Herd about the need to maintain contact and develop identity and rapport with sample members. He noted a challenge between funding cycles is the lack of a builtin mechanism for sending out birthday cards, newsletters, and o ccasional communications, which are not terribly expensive but could yield substantial rewards back in the field in terms of the representativeness of the sample and response rates.
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From page 40... ...
He asked the presenters for their thoughts on trust and the ways to build trust in a study to not only maintain a panel, but also to improve initial response rates. Ryff responded that she would frame the issue more in terms of rapport than trust, because trust implies more complex interactions.
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From page 41... ...
The first study Drake described was to understand barriers and strategies to improve participation in biorepositories for African American men, specifically for recruiting a prostate cancer cohort. Recruitment was made at the time of diagnosis with consent to grant access to their medical records, completion of a questionnaire, and collection of biospecimens.
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From page 42... ...
The next study that Drake described was designed to assess the impact of different consent models on intentions to participate in a biorepository for secondary research among a diverse sample of women. Four models of consent were used: (1)
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From page 43... ...
She noted an interaction between race and trust in research and doctors, such that trust in medical research, as well as trust in doctors, was significantly and negatively associated with the level of control, but only among White participants, not Black participants. Drake summarized her research among men, particularly African American men, and a diverse sample of women as illustrative of how to better educate and work with patients and community members on consent models for biorepositories.
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From page 44... ...
For example, there are more than 3 million Google searches every minute; more than 300 million monthly active Amazon users globally; more than 2 billion monthly active Apple device users globally; and more than 2.2 billion people on Facebook globally. Burke-Garcia advocated using new and emerging communication channels to support and amplify survey research, and broadening the conceptualization of what social and digital media mean for survey research.
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From page 45... ...
However, she said that leveraging groups that come together around similar issues or topics can be effective to get additional types of samples and subgroups to participate in research. In addition, she pointed to online groups and online influencer networks that offer opportunities to potentially do some additional sampling work.
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From page 46... ...
Discussion John Phillips kicked off a discussion about using social media to provide awareness, comfort, or trust in participating in a survey, and he asked who the influencers are for aging studies. Burke-Garcia replied a large majority of online influencer spaces are comprised of moms and dads who become caretakers of their children and their aging parents.
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From page 47... ...
He noted the opportunity in longitudinal studies to build that trust over time, but the initial ask to participate is in some respect the most important point. Drake responded that trust is very important, but so is "pulling back the curtain" and helping people understand what is going on behind the scenes.
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