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Building Data Capacity for Patient-Centered Outcomes Research Priorities for the Next Decade (2022) / Chapter Skim
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1 Committee Charge and Process
Pages 11-16

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From page 11...
... The data infrastructure includes data sources and functionalities that support the research. ASPE asked the National Academies of Sciences, Engineering, and Medicine to appoint a consensus study committee and identify issues critical to building data capacity for PCOR and for generating new evidence to inform health care decisions.
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From page 12...
... As part of its activities, the commit tee will also • C onsider the published review of the history and trajectory of the ­Office of the Secretary Patient-Centered Outcomes Research Trust Fund (­OS-PCORTF) portfolio of investments and the OS-PCORTF roadmap; • Assess anticipated changes to health care priorities and priorities for health data and their impact on building data capacity into the foresee able future, as identified by ASPE; • Evaluate the feasibility and utility of developing a phased-in approach to building the interoperable data capacity for patient-centered outcomes research with existing databases in HHS, other Federal Departments and the private sector in a phased approach, such as projects identified in the Cures Act Title III Section 4003 (Interoperability)
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From page 13...
... • Discuss what matters HHS is best positioned to address and how the agency could maximize resources available for the PCOR data infrastructure (representing four percent of the PCOR Trust Fund) in the context of HHS's public mission, authorities, programs, and data resources.
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From page 14...
... The third workshop, held on June 14, 2021, focused on ways of enhancing collaborations, data linkages, and the interoperability of electronic databases to make the PCOR data infrastructure more useful in the years ahead. The goals of the workshop were to • Discuss how research and data collaborations can evolve to meet PCOR and data capacity challenges, and how HHS can support effective research and data collaborations; • Identify barriers and potential solutions to the access and use of linked public data, and to the access and use of linked public and private/proprietary data; and • Discuss the feasibility and utility of developing a phased-in a­ pproach to building the interoperable data capacity for PCOR with existing databases in HHS, in other federal departments, and in the private sector.
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From page 15...
... Chapter 3 discusses the committee's conclusions concerning those aspects of the PCOR data infrastructure that emerged as areas that could particularly benefit from being prioritized as part of ASPE's work over the next decade. The topics covered in the final report reflect the topics covered in the three interim reports, with an effort to offer integrated conclusions on the themes that overlapped across the workshops.
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Key Terms

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  • data standards

  • care decisions
  • academies website
  • electronic databases
  • input received
  • maximize resources

  • outcomes research
  • health data
  • includes data
  • data users
  • data user

  • build data
  • current pcor
  • issue interim
  • published interim
  • pcor focuses

  • interim conclusions
  • specific sections
  • cures act
  • overarching findings
  • worded primarily


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