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Appendix E: Office of the Secretary PCOR Trust Fund Project Portfolio
Pages 335-354

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From page 335...
... Appendix E Office of the Secretary PCOR Trust Fund Project Portfolio 335
From page 336...
... Centered Outcomes Research Making Medicaid Data This project seeks to increase data capacity or FDA, NIH/ 2021 Active 1, 2, 3 More Accessible Through infrastructure that will support research that NLM Common Data Models and will guide decisions about the efficacy of health FHIR APIs interventions utilized in Medicaid and Children's Health Insurance Programs.
From page 337...
... It updates and exchanges health data Development for patients with multiple chronic conditions. This expansion will also add data elements for COVID-19 and post-acute sequelae of COVID-19 (PASC)
From page 338...
... The project will also evaluate Electronic Health Records the feasibility of creating new data linkages to Visit Data National Death Index (NDI)
From page 339...
... (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes Research Data Capacity for Patient- This project builds on the eCare plan 1.0 by NIDDK, 2020 Active 1, 2, 3, 4 Centered Outcomes creating additional patient-use resources and AHRQ Research through Creation adding capabilities based on feedback from the of an Electronic Care Plan pilot.
From page 340...
... A Synthetic Health Data This project will convene a technical expert ONC 2019 Active 5 Generation Engine to panel to develop five to seven priority use cases Accelerate Patient-Centered for development of new synthetic data modules Outcomes Research to enhance the synthetic data that Synthea can generate. Synthea is an open-access software program that generates large volumes of high quality and realistic synthetic patient records for use in research, including PCOR.
From page 341...
... Linking State Medicaid This project seeks to link records from state level ASPE ACF/ 2019 Active 3, 4 and Child Welfare Data Medicaid and child welfare systems in a sample OPRE for Outcomes Research of states to create a dataset of patient-level data on Treatment for Opioid that includes Medicaid enrollment, diagnoses, Use Disorder and Other services, claims, and child welfare outcomes. This Behavioral Health Issues project will result in improved data infrastructure and greater data availability for PCOR targeted at parents with children in the child welfare system with a focus on those needing treatment for OUD, other substance abuse disorders, or behavioral health diagnoses.
From page 342...
... The new Administrative Records: A data linkage will improve data infrastructure to Project support PCOR that incorporates investigation of differences in intervention efficacy for previously unexamined subpopulations. Identifying Co-Occurring This project will develop algorithms for use on CDC 2019 Active 3, 4, 5 Disorders among Opioid the linked data from the FY18 project to identify Users Using Linked hospital encounter records and death records Hospital Care and of patients treated for an OUD that also have a Mortality Data: Capstone diagnosis of another substance use or mental health to an Existing FY18 OS- disorder.
From page 343...
... Data More existing data and exchange standards to facilitate Available for Research and data exchange between differing EHRs, research, Public Health and public health record systems in real time.
From page 344...
... , Office of the National Coordinator for Health Information Technology (ONC)
From page 345...
... , and NIH. Assessing and Predicting This project is creating a data platform to AHRQ, ASPR 2018 Active 4 Medical Needs in a facilitate the reporting and analysis of data related Disaster to medical encounters during a public health emergency or disaster.
From page 346...
... : weight-management program intervention data, Integrated Data for and census information to improve availability of Patient-Centered Outcomes that data for PCOR focused on childhood obesity. Research Project Strengthening the This project is redesigning the Medical Mortality CDC 2018 Active 3, 4 Data Infrastructure for Data System (MMDS)
From page 347...
... Technologies for Donating This project modified the CMS Blue Button CMS, NIH 2017 Completed 3, 5 Medicare Beneficiary platform to allow Medicare beneficiaries to allow Claims Data to Research access to their claims data for research purposes. Studies Additionally, the project resulted in an application that allows researchers to view patient data from the CMS Blue Button platform and clinical data and an application that lets developers access CMS Blue Button data.
From page 348...
... Framework for Data Use, & Use of Technology for Privacy Use of the ADAPTABLE This project built on lessons learned from Aspirin NIH 2016 Completed 1, 2, 3, 4 Trial to Strengthen Dosing: A Patient-centric Trial Assessing Benefits Methods to Collect and and Long Term Effectiveness (ADAPTABLE) to Integrate Patient-reported develop a Patient-Reported Data Assessment Information with Other tool that allowed researchers to compare patientData Sets and Assess Its reported data with data from EHRs.
From page 349...
... Improving the Mortality This project improved on existing infrastructure CDC 2015 Completed 1, 3 Data Infrastructure for to facilitate more timely delivery of state death Patient-Centered Outcomes records to the NDI database and linked NDI data (PCOR) to hospital datasets collected at the national level.
From page 350...
... It also Registries created a library of common data definitions for use in EHRs that will facilitate collection of standardized outcome data. Source Data Capture from This project created a framework for development FDA 2016 Completed 1, 4 Electronic Health Records: of systems used for electronic source data capture Using Standardized Clinical in regulated clinical investigations.
From page 351...
... Improving Beneficiary This project was a conceptual redesign of the CMS CMS 2016 Completed 5 Access to their Health Blue Button platform to standardize data on the Information through an platform for acceptance by multiple applications Enhanced Blue Button and allow Medicare beneficiaries using the platform Service to make decisions on participation in research based on their preferences. It also made it easier for researchers to selectively pull Medicare claims data based on the needs of their study.
From page 352...
... System: Data Access Standards for Electronic Health Records (EHRs) Creating the Foundational This project developed technical and functional ONC 2013 Completed 1, 5 Blocks for the Learning specifications needed to enable an EHR to retrieve Health Care System: and display standardized health data, enter that Structured Data Capture data in a structured form or template, then store (SDC)
From page 353...
... Development of Data This project created the Common Data Elements ONC, NLM 2012 Completed 1, 5 Infrastructure for Use of (CDE) Repository which was designed to allow Electronic Health Records access to the structured human- and machine(EHRs)


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