Supporting Children with Disabilities Lessons from the Pandemic: Proceedings of a Workshop (2022) / Chapter Skim
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4 Home Care Settings
4 Home Care Settings
Pages 27-36
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From page 27... ...
Home care is a critical part of taking care of children with illness or disabilities, she explained, and can include nursing care, long-term shift care, health care aides, as well as personal care for daily living. Foster shared three "revelations" from the pandemic related to homecare: home care as integrated healthcare, home care as secure employment, and home care as measured care.
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From page 28... ...
For example, if a child is hospitalized, home care providers cannot get paid by Medicaid for the days he or she is in the hospital. Another systemic issue that was highlighted during the pandemic, said Foster, is that children who were reliant on school-based aides during school hours were not able to access these caregivers while attending remote class, due to regulations that required aides to provide service in a school setting.
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From page 29... ...
CAREGIVER ACTION NETWORK During the pandemic, many family members were thrust into the caregiver role for the first time, said Nichole Goble (Caregiver Action Network)
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From page 30... ...
Another program is the Caregiver Help Desk, which offers free support to family caregivers across the country; caregivers can talk with experts via phone, email, or chat and can discuss challenges and get connected with local and community-based resources and services. A new CAN program, said Goble, is the Community Care Corps, which will foster innovative models in which local volunteers assist family caregivers, older adults, or persons with disabilities with non-medical care in their own homes.
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From page 31... ...
While there is broad interest across the nation in making these programs permanent, said Kearns Moore, there is also resistance to changing the status quo and established flows of money. There is a need to invest more money in paid parent caregiving to reduce the need for institutional care and family wrap-around services, said Kearns Moore.
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From page 32... ...
For example, said Kearns Moore, the state will explore innovative ways to pay personal care attendants according to the level of care provided, and/ or paying more for night and weekend care. As part of its commitment to providing services closer to home, North Dakota plans to spend some of its funding on improving transitions.
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From page 33... ...
. There were several changes made during the pandemic that were aimed at supporting foster children; Seltzer highlighted three that could be carried forward to improve outcomes for this population: improving access to medical foster parent training, linking families to housing resources, and physician home visits.
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From page 34... ...
This program, said Seltzer, has improved foster care outcomes, has helped biological parents reunify with their children, and has shown significant cost savings for the state. Supporting and expanding these types of programs is a critical step toward promoting home-based care for children with disabilities, she said, and potential funders for programs include child welfare prevention services programs, the Department of Housing and Urban Development, and Medicaid.
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From page 35... ...
Kearns Moore said that her wish would be that parents could be paid to be the caregiver of their child with disabilities; she suggested that this would lead to a huge reduction in the costs of wrap-around benefits and public assistance programs, and would result in better care and healthier happier children. Seltzer encouraged a "housing first" approach, noting that families caring for a child with disabilities need to be able to do so without worrying about paying the rent.
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From page 36... ...
Could medical foster parent training be tailored for use by family members of loved ones with disabilities? Now that these virtual platforms and programs have been developed, said Seltzer, there is no reason not to expand the audience.
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