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8 Looking Ahead
Pages 111-116

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From page 111...
... (Cattapan, Pande) • Balancing scientific progress, patient safety and autonomy, safety of the future child, human dignity, equality, and non discrimination, among many other considerations -- including cost, access, and social necessity -- are important when deter mining whether or how to pursue IVG.
From page 112...
... • The potential for IVG to greatly expand embryo screening raises concerns about routinizing prenatal selection and exacerbating inequalities for those living with disabilities. (Cattapan)
From page 113...
... Such a capacity raises concerns about the possibility of eugenic practices and potential implications for disability communities. Therefore, future discussions on continued development and potential use of IVG ought to be grounded in a disability justice framework.
From page 114...
... (Amato, Gamal, Kahn, Mathews, Suter) • In addition to safety, any clinical trial of IVG would need to address concerns related to protecting human subjects, includ ing establishing appropriate oversight, equitably select­ing trial participants, designing and handling informed consent, and conducting follow-up.
From page 115...
... Clark noted that future discussions could also include non­reproductive uses of IVG, such as how it could be used for research to improve human health, which was outside the scope of the workshop. Such conversations would need to be approached with care given the differing views about whether even nonheritable uses ought to be advanced, Cattapan noted, because "the legitimation of IVG for nonheritable purposes might end up being one pathway to clinical use." WORKSHOP WRAP-UP Presentations and discussions over the course of the 3-day workshop brought together scientists, clinicians, sociologists, psychologists, ­ethicists, lawyers, patient advocates, and others.


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