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Appendix: Past Commissions and Advisory Boards
Pages 503-520

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From page 503...
... ; · NIH Recombinant DNA Advisory Committee; · Working Group on Ethical, Legal, and Social Implications of the Human Genome Project (ELSI Working Group) ; · Biomedical Ethics Advisory Committee; · New York State Task Force on Life and the Law; and · New jersey Bioethics Commission.
From page 504...
... McCormick, S.T.D. Professor of Christian Ethics Kennedy Institute for the Study of Reproduction and Bioethics Georgetown University Washington, D.C.
From page 505...
... Function: to identify basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects, develop guidelines that should be followed in such research to assure that it is conducted in accordance with such principles, and make recommendations to the D HEW Secretary regarding the development of regulations Scope: limited to research conducted or funded by the DHEW, study topics were congressionally mandated Membership charactensHcs: 5 scientists, 3 lawyers, 2 ethicists, and 1 social worker Members: Chairperson Kenneth I
From page 506...
... 506 APPENDIX Reports: Report and Recommendations: Research on the Fetus, 1975 Appendix to Report and Recommendations: Research on the Fetus, 1975 ProceedingsoftheMarchl4-15,1975Meeting The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, 1978 Appendix (Volumes I and II) to The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, 1978 Report and Recommendations: Research Involving Prisoners, 1976 Appendix to Report and Recommendations: Research Involving Prisoners, 1976 Report and Recommendations: Research Involving Children, 1977 Appendix to Report and Recommendations: Research Involving Children, 1977 Report and Recommendations: Psychosurgery, 1977 Appendix to Report and Recommendations: Psychosurgery, 1977 Disclosure of Research Information Under the Freedom of Information Act, 1977 Report and Recommendations: Special Study: Implications of Advances in Biomedical and Behavioral Research, 1978 Report and Recommendations: Research Involving Those Institutionalized as Mentally Infrm, 1978 Appendix to Report and Recommendations: Research Involving Those Institutionalized as Mentally Inf rm, 1978 Report and Recommendations: Institutional Review Boards, 1978 Appendix to Report and Recommendations: Institutional Review Boards, 1978 Report and Recommendations: Ethical Guidelines for Delivery of Health Services byDHEW,1978 Appendix to Report and Recommendations: Ethical Guidelines for Delivery of Health Services by DHEW, 1978
From page 507...
... Congress (under: Biomedical Research and Training Amendments of 1978, P.L. 95-622~; appointments made by the President Function: to advise the President and Congress on bioethical issues Scope: report topics mandated by Congress, but commission also had authority to undertake studies upon its own initiative Membership characteristics: rotating; as specified by law, there were 11 active commissioners at a time, 3 of whom were active in the practice of medicine, 3 biomedical or behavioral researchers, and 5 members from other fields Members: Chainnan Morris B
From page 508...
... 1982) Executive Director Alexander Morgan Capron, LL.B.
From page 509...
... Volume 2: Appendices, Empirical Studies of Informed Consent, 1982 Making Health Care Decisions: A Report on the Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Volume 3: Appendices, Studies of the Foundations of Informed Consent, 1982 Splicing Life: A Report on the Social and Ethical Issues of Genetic Engineering with Human Beings, 1982 Compensatingfor Research Injuries: The Ethical and Legal Implications for Programs to Redress Injured Subjects, 1982 Deciding to Forego Life-Sustaining Treatment: A Report on the Ethical, Medical, and Legal Issues in Treatment Decisions, 1983 Implementing Human Research Regulations: Second Biennial Report of the Adequacy and Uniformity of Federal Rules and Policies, and of their Implementation, for the Protection of Human Subjects, 1983 Screening and Counselingfor Genetic Conditions: The Ethical, Social, and Legal Implications of Genetic Screening Counseling and Education Programs, 1983 Securing Access to Health Care: The Ethical Implications of Differences in the Availability of Health Services.
From page 510...
... Walters, Ph.D. Kennedy Institute of Ethics Georgetown University Washington, D.C.
From page 511...
... Office of Recombinant DNA Activities National Institutes of Health Bethesda, Maryland
From page 512...
... In terms of policy-making, the goals of the ELSI Working Group are to clarify the ethical, legal, and social consequences of mapping and sequencing the human genome through a program of targeted research; to develop policy options at professional, institutional, governmental, and societal levels to ensure that genetic information is used to maximize the benefit to individuals and society; to improve understanding of the issues and policy options through educational initiatives at public, professional, and policy-making levels; and, to stimulate public discussion of the issues and policy options. Scope: all social, legal, and ethical issues relating to the Human Genome Project Membership characteristics: with the exception of the chairperson, members are ad hoc technical consultants representing basic and clinical genetics, law, and ethics Members: Chairperson Nancy Wexler, Ph.D.
From page 513...
... APPEND[X Reports: Workshop on the Introduction of New Genetic Tests, 1990 Genetic Discrimination and the Americans with Disabilities Act, 1991 513
From page 514...
... Professor, Department of Obstetrics and Gynecology University of North Carolina School of Medicine Alexander Morgan Capron University Professor of Law, Medicine and Public Policy The Law Center University of Southern California Christine K Cassel, M.D., F.A.C.P. Chief, Section of Internal Medicine Pritzker School of Medicine University of Chicago James Franklin Childress, Ph.D.
From page 515...
... Professor of Medicine, Health Care, and Human Values Department of Internal Medicine University of Cincinnati College of Medicine Replaced in 1988 by Don Nickles (R-OK) 515 Members of Congressional Bioethics Board SENATE MEMBERS Albert Gore (D-TN)
From page 516...
... Conovitz, M.D. Attending Physician, North Shore University Hospital Clinical Associate Professor of Medicine Cornell University Medical College Saul J
From page 517...
... James Rudin National Director of Interreligious Affairs The American {ewish Committee Rev. Betty Bone Schiess Episcopal Diocese of Central New York Barbara Shack The New York Civil Liberties Union Rev.
From page 518...
... Senior Vice President, Patient Services and Executive Director of Nursing Overlook Hospital Rita Martin Legislative Director N.J. Citizens Concerned for Life
From page 519...
... Friedland, Esq. Consultant Sally Sulphen, B.A., Admnistrative Assistant Reports: Problems and Approaches in Health Care Decision Making: The New fersey Experience, 1990 Advance Directives for Health Care: Planning Ahead for Important Health Care Decisions, 1991 The New fersey Advance Directives for Health Care and Death Acts: Statutes, Commentaries, and Analyses, 1991 After Baby M: The Legal, Ethical, and Social Dimensions of Surrogacy, 1992 Death and the Brain-Damaged Patient, 1992 The New fersey Advance Directives for Health Care Act (and the Patient SelfDetermination ActJ: A Guidebook for Health Care Professionals, 1992


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