Working Together We Can Help People Get Good Care When They Are Dying (2000) / Chapter Skim
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Working Together:We Can Help People Get Good Care When They Are Dying
Working Together:We Can Help People Get Good Care When They Are Dying
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People who are dying should not be afraid that those who care for them will ignore their wishes or those of their loved ones. We need to create a health care system that protects and honors people who are dying.
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What health professionals assume people want or believe may be wrong. · Dying people and those close to them have many needs.
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First and most basic, too many people suffer needlessly at the end of life. This happens when doctors and other professionals: · Do not give care that is known to help.
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· Work with families, especially when patients cannot make their needs clear. Second, the education of health care professionals too often ignores the dying patient.
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· Our health care system is complicated. Patients and families often have a hard time fancying and keeping the care they need.
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they or their loved ones have been badly treated. Poor care at the end of life sometimes happens because health care professionals are not well trained.
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for families to come together. All parts of our society including health care organizations, governments, churches, and workplaces can help improve the way people die.
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Doing this will often require support from lawmakers, voters, the media, and health care managers. It will also require knowing more about these barriers.
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The National Institutes of Health and many other public and private groups should work together to find out more about end-stage disease and end-of-life care. We can use this knowledge to create guidelines for caregivers.
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of this summary from the Last Acts program at the Robert Wood Johnson Foundation, call 609-951-5753. This summary is also available online on the National Academy Press website (www.nap.edu)
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, Chair, Department of Geriatrics and Adult Development Mt. Sinai Medical Center, New York ROBERT BURT, J.D., Professor of Law, Yale Law School, New Haven, Connecticut MARGARET CAMPBELL, M.S.N., Clinical Nurse Specialist/Nurse Practitioner, Detroit Receiving Hospital and University Health Center, Detroit ROBERT KLlEGMAN, M.D., Chair, Pediatrics, Medical College of Wisconsin, Milwaukee MATTHEW LOSCALZO, M.S.W., Research Associate, The Johns Hopkins University School of Medicine, Director, Oncology Social Work, The Johns Hopkins Oncology Center, Baltimore, Maryland JOANNE LYNN, M.D., Director, Center to Improve Care of the Dying, George Washington University, Washington, D.C.
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DONALD PATRICK, Ph.D., Professor, Department of Health Services, University of Washington, Seattle RICHARD PAYNE, M.D., Chief, Pain and Symptom Management Section, and Associate Professor of Medicine, Department of Neuro-Oncology, M.D. Anderson Cancer Center, The University of Texas, Houston GEORGE THIBAULT, M.D., Chief Medical Officer, Brigham and Women's Hospital, Boston, Massachusetts THERESA VARNER, M.S.W., M.A., Director of Public Policy, American Association of Retired Persons, Washington, D.C.
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The Institute also acknowledges the assistance of Donna Bell Sanders of the California Family Health Council, Vicki Weisfeld of the Robert Wood Johnson Foundation, and Janice Schuster of Americans for Better Care of the Dying in preparing this document. Copyright 2000 by the National Academy of Sciences All rights reserved.
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