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Improving Access to and Confidentiality of Research Data Report of a Workshop (2000) / Chapter Skim
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1 Introduction
Pages 1-4

The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
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From page 1...
... This workshop brought together several participants from that study and many others representing various communities data producers from federal agencies and research organizations; data users, including academic researchers; and experts in statistical disclosure limitation techniques, confidentiality policies, and administrative and legal procedures.
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From page 2...
... However, technology has concurrently created new methods for identifying individuals from available information, of which longitudinal research data are but one of many sources. Longitudinal files that link survey, administrative, and contextual data provide exceptionally rich sources of information for researchers working in the areas of health care, education, and economic policy.
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From page 3...
... Their arguments are summarized in this report. WORKSHOP GOALS As noted above, a central objective of the workshop was to review the benefits and risks associated with public-use research data files and to explore alternative procedures for restricting access to sensitive data, especially longitudinal survey data that have been linked to administrative records.
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From page 4...
... Presentations on the research benefits of linked longitudinal data are summarized, along with discussions of disclosure risk assessment and quantification. Chapter 3 reviews presentations that addressed ethical and legal aspects of data dissemination, as well as discussion on the role of institutional review boards.
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Key Terms

  • administrative records
  • linked longitudinal
  • longitudinal data
  • limiting disclosure
  • data users

  • institutional review
  • ethical requirements
  • current practices
  • restricted access
  • longitudinal microdata

  • data access
  • review boards
  • data dissemination
  • disclosure limitation
  • statistical disclosure

  • continuing rapid
  • protect confidentiality
  • facilitating data
  • reduce disclosure
  • reviews presentations

  • measures designed
  • workshop brought
  • participants discussed
  • explore alternative
  • extensive administrative

  • competing approaches
  • data confidentiality
  • sometimes feasible
  • microdata require
  • suppress direct


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