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Appendix E: Data Gathering Activities
Pages 180-193

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From page 180...
... Among the central topics discussed, the participants examined what progress has been made in HIV/AIDS prevention, what barriers still hinder prevention efforts, and what steps are needed to help overcome those barriers. Although this review cannot cover all of the issues discussed, the following descriptions cover some representative samples of the observations.
From page 181...
... Increased prevention efforts also should be targeted at young people, many of whom are sexually active and, because they came of age after the first flourish of HIV/AIDS prevention activities, may not have gained adequate knowledge of risk behaviors and methods to reduce those risks. In addition, participants noted that as new treatments are becoming available, more people are living with HIV/AIDS, and thus it is becoming increasingly important to target interventions to reach HIV-infected individuals.
From page 182...
... A representative of a state AIDS agency added that "CDC and HRSA must do a much better job of working with each other to identify prevention goals." In particular, there was a strong call, endorsed by numerous participants, for more coordination between federal and state agencies to ensure that local community planning groups get the resources they are requesting to improve prevention efforts. Several participants also called for establishing a single point of contact for federal and state funding to streamline the process and ensure that all state and local groups, both public and private, have equitable access to "the system." Coordination of both funding and programs needs to be improved at the state and local levels as well.
From page 183...
... We've got to find out who faces the highest risks in our own local areas." Prevention efforts then should be conducted in a consistent, on-going, and nonintrusive manner. Intervention services should be made available in the neighborhoods where high risk individuals live, congregate, procure drugs, or engage in sex trade, and the services should be readily available at the times when recipients most need them.
From page 184...
... For example, numerous participants said there is ample scientific evidence that needle exchange and needle cleaning programs are effective in reducing the incidence of HIV/AIDS among injection drug users and their sexual partners, and that such programs do not result in an increase in illegal drug use. "We have the capacity to reduce effectively HIV transmission among injection-drug users, but we don't have the political will to provide the resources so
From page 185...
... Participants said they want public policymakers to strongly endorse the importance of providing condoms in prevention programs, and to encourage local school districts to implement comprehensive sex education and condom availability in their health programs. As one participant concluded, "Leadership is needed in making the case, to the public and to policy makers, that sanctioning interventions to prevent HIV infection is not equivalent to sanctioning the behaviors that transmit the disease." II.
From page 186...
... As one caveat regarding the need for expanded data collection, a state agency representative made the following request: "Do not ask states to institute complex prevention data and reporting systems that focus primarily on the need of the federal government to justify prevention. This sometimes makes it difficult to focus on real prevention and evaluation data needs." Technical Assistance Federal and state agencies should better coordinate their technical assistance efforts, to minimize overlap in funding and data gathering and to ensure that all prevention programs have adequate infrastructure to carry out their activities.
From page 187...
... Other program representatives suggested that, in order to facilitate rapid dissemination of research findings, federal agencies should be encouraged to use multiple technologies, including Internet technologies and satellite teleconferences. Few community-based organizations have the staff or resource capability to employ or retain behavioral or social scientists to conduct HIV/ AIDS prevention research, according to respondents.
From page 188...
... There also needs to be better coordination between groups or facilities that provide HIV/AIDS prevention and facilities that provide other health-related services, such as primary care clinics, drug treatment centers, sexually transmitted diseases clinics, and mental health centers. "It is very difficult to put prevention interventions into place for only HIV/ AIDS clients and to ignore the need to provide similar messages and programs for other sexually transmitted diseases," a state HIV/AIDS program official said.
From page 189...
... Among the various opportunities cited, respondents wanted federal and state agencies to expand mass media HIV/AIDS prevention education messages that support local efforts to educate the public on the entire continuum of risk reduction and the level of risk associated with specific behaviors. These messages should be nonjudgmental but communicate that HIV/AIDS is still a dangerous and ultimately fatal disease.
From page 190...
... "CDC must continue to make progress on addressing HIV infection among injection drug users by asserting that syringe exchange programs are a high-priority intervention that needs to become fully funded." III. SITE VISITS TO STATE HEALTH DEPARTMENTS During the course of the study, four Committee members conducted interviews with officials working in state and city health departments.
From page 191...
... when it comes to prevention efforts. · The health departments reported trying to get the Community Planning Groups (CPGs)
From page 192...
... in order to bridge the gap between reality and research. · Funds for more collaborative projects involving community based organizations, health departments, and HIV prevention researchers.
From page 193...
... · Center for AIDS Prevention Studies, UCSF to strengthen intervention, strategies, technology diffusion, and advance community planning. What are the most significant barriers that you encounter to planning or implementing effective HIV prevention programs in your state (or city)


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