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Appendix A: Ensuring Quality Cancer Care, Report Summary
Pages 109-122

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From page 109...
... Reproduced Tom National Cancer Policy Board, Ensuring Quality Cancer Care, Washington, D.C.: National Academy Press, 1999.
From page 110...
... A system of ideal cancer care would articulate goals consistent with this vision of quality cancer care; . implement policies to achieve these goals; .
From page 111...
... . Quality care means providing patients with appropriate services in a technically competent manner, with good communication, shared decision making, and cultural sensitivity.
From page 112...
... The reasons for failure to deliver high-quality care have not been studied adequately, nor has there been much investigation of how appropriate standards vary from patient to patient. The means for improving the quality of cancer care, which involve changes in the health care system, are the first five of a total of ten recommendations of the National Cancer Policy Board.
From page 113...
... RECOMMENDATION 2: Use systematically developed guidel~nes based on the best available evidence for prevention, diagnosis, treatment, and palliative care. Total quality improvement initiatives, disease management programs, and implementation of clinical practice guidelines all have the potential to improve care within health systems.
From page 114...
... As large health care purchasers, both sectors have a stake in improving the quality of care, and both sectors have knowledge and experience concerning quality measurement and reporting. A public-private collaborative approach has recently been recommended by the President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry, and some initial implementation steps are being taken (President's Advisory Commission, 1998~.
From page 115...
... For Medicare beneficiaries in managed care plans, accountability systems should incorporate core measures of quality cancer care. Cancer care quality measures should be applied to care provided through the Medicare and Medicaid programs as a requirement for participation in these programs.
From page 116...
... Cancer care quality measures should be disseminated widely and communicated to purchasers, providers, consumer organizations, individuals with cancer, policy makers, and health services researchers, in a form that is relevant and useful for health care decision-making. Quality measures enable consumers and purchasers to judge the quality of a system of care by its performance relative to evidence-based standards.
From page 117...
... RECOMMENDATION 6: Federal and private research sponsors such as the National Cancer Institute, the Agency for Health Care Policy and Research, and various health plans should invest in clinical trials to address questions about cancer care management. for some questions regarding cancer management, a health services research component could possibly be integrated into a clinical trial designed to assess the efficacy of a new treatment.
From page 118...
... Ideally, quality assessment studies would include recently diagnosed individuals with cancer in care settings representative of contemporary practice across the country, using information sources with sufficient detail to allow appropriate comparisons. The available evidence on the quality of cancer care is far Tom this ideal.
From page 119...
... Data gathered into national databases, in particular, should be made available quickly for analysis by investigators and evaluators. RECOMMENDATION 8: Public and private sponsors of cancer care research should support national studies of recently diagnosed individuals with cancer, using information sources with sufficient detail to assess patterns of cancer care and factors associated with the receipt of good care.
From page 120...
... A limited number of free services or financial assistance programs are available to people with cancer, but they do not substitute for adequate insurance coverage for cancer treatment. RECOMMENDATION 10: Studies are needed to find out why specific segments of the population (e.g., members of certain racial or ethnic groups, older patients)
From page 121...
... The Centers for Disease Control and Prevention's National Breast and Cervical Cancer Early Detection Program provides screening for women unable to afford care. A few states have launched special programs to pay for cancer care for the poor and uninsured (e.g., the Maryland program for women with breast cancer)
From page 122...
... 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved.


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