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What Would an Ideal Cancer Data System Look Like?
Pages 11-17

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From page 11...
... measuring and monitoring the quality of cancer care within systems of care to promote quality improvement and allow purchasers and the public to hold systems and providers accountable for the care they deliver. Available databases have been creatively exploited to meet these objectives, but most sources can be critiqued on one of two important grounds- a lack of geographic representation, or the absence of critical data elements needed to adjust results to make comparisons.
From page 12...
... data systems for local quality assurance purposes, 8. public reporting of selected aggregate quality scores, 9.
From page 13...
... : : :: :: : ~ :: : : :: :: ~ : :: ::: :::: :: ~ ::: : : :: :: : ::: 11-3 ~ Evidence obtained from multiple time series with~o~r without the intervention—dramatic results in uncontrolled experiments (e.g. the re~sults of the introduction of penicillin treatment in the ~1~940s)
From page 14...
... Quality assessments depend on the accurate recording of stage and degree of comorbidity because what is considered appropriate treatment varies by these patient attributes. An ideal cancer care data system would include information on cancer stage and comorbidity, reported in a standard way.
From page 15...
... A study of the quality of cancer care conducted in a few states or within a particular health plan, for example, might highlight problems in quality; however, broader inferences from such studies to the care received in other areas or other plans are difficult to make because the population from which the results are drawn usually differs in important ways from the broader population. The determinants of quality of care have not yet been well established, but evidence suggests the presence of significant geographic variation in patterns of cancer care that persist even after adjustments are made for characteristics of patients and their access to services (Schuster, 1998a)
From page 16...
... REPEATED STUDIES TO MONITOR NATIONAL TRENDS National studies aimed at assessing the quality of cancer care would ideally be repeated at regular intervals to measure progress toward improvement goals. Just as national surveys are conducted regularly of the general population, healthcare providers, and certain healthcare institutions to monitor the achievement of health objectives for the nation (e.g., Healthy People 2010)
From page 17...
... ADAPTABILITY Even though consistency in measurement is often desirable so that trends can be accurately monitored, cancer care data systems need to be flexible so that accommodations can be made for new evidence on quality measures, changes in healthcare delivery, and technological innovation. PROTECTIONS TO ENSURE PRIVACY OF HEALTH INFORMATION Maintenance of sensitive personal health information, such as the diagnosis of cancer, in large computerized databases raises serious issues regarding privacy and confidentiality.


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