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From page 155... ... , 138, 139, 140, 146 see also Elderly persons Agency for Healthcare Research and Quality (AHRQj, 6, 7, 34, 44, 45, 48, 49, 71, 84-85, 89, 90, 91, 92, 117, 126 Aggregate quality scores, 3, 12, 16, 17, 30,46,69,71,78 AIDS Cost and Services Utilization Study, 43 Ambulatory care, 3, 5, 6, 34, 43, 65, 85, 88, 89, 118, 119, 142-143 American Association of Family Physicians, 85 American Cancer Society (ACS) , 41-42, 44,58, 126 see also National Cancer Data Base American College of Physicians, 85 American College of Radiology, 20, 2324 American College of Surgeons' CommissiononCancer,4,31,33, 116, 126 see also National Cancer Data Base American Diabetes Association, 85 American Indians, 59 Read the entire page →
From page 156... ... , 79 diagnosis, not mammography, 12, 28, 30, 47, 50, 70, 112, 132-140 mammography,28,21,43,47, 51, 62-63,66,111,112,137 patient satisfaction, 25, 29, 51 quality-of-care measures, 47, 49, 5051,83 radiation therapy, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139 surgery,25,26, 28, 30-31,43,44,47, 50, 70, 81, 89, 112, 113, 132-140 survival rates and durations, 21, 26, 29, 139, 140 treatment, 12, 20, 39, 50, 79, 132, 133, 134; see also "radiation therapy " and "surgery" supra C Cancer Registries Amendment Act, 57, 72 Cancer Research Network, 42-43, 126 Case-control studies, 13 Case studies, 10, 18-36, 79, 80 benchmarks, 21, 36 INDEX breast cancer, 19, 20, 21, 25-36 (passim) , 79 chemotherapy, 21, 22, 25, 26, 33 clinical practice guidelines, 19, 20, 21,22,23,27,30,34-35,79 colorectal cancer, 20, 24, 27, 31, 3233 comorbidity, 19, 27, 33 computer-based patient records, 19, 20,22,30,79 diagnosis, 20, 21, 25, 28, 30, 34, 79 end-of-life care, 2O, 21, 36, 79 health insurance, 20, 26-27, 28, 3031,33,34,55,75 hospitals and hospitalization, 21, 25, 33,79 medical charts and records, 20,23, 26,28,32-33,34 outcome measures, 22, 23, 25, 26, 27 pain control, 21,36 patient satisfaction, 21, 25, 26, 29, 34 performance standards, 22, 27, 28-29, 36 privacy and confidentiality, 27, 32-33 process standards, 23, 26 quality-of-care measures, 21, 24-26, 34,36,79 radiation therapy, 23-24, 24, 25, 26, 27,28,31,33 registries, 20, 28, 29, 34 stages of cancer, 19, 25, 26-27, 28, 33,34 treatment, general, 20, 21, 27, 79 Centers for Disease Control and Prevention (CDC) Read the entire page →
From page 157... ... cancer, 12, 53, 117 Computer-based patient records, 2, 3, 4, 6, 10, 12, 13-14,38,52-53,75,77, 80-81, 90, 93 case studies, 19, 20, 22, 30, 79 Intranets, 6, 14, 53, 90 privacy and confidentiality, 4, 71, 73, 81,93 Confidentiality, see Privacy and confidentiality Consent, see Informed consent Consumer Assessment of Health Plans Survey, 34 Cost factors, see Economic factors Cross-sectional studies, 3, 12, 42, 46, 77 D Demographic factors, 11, 33, 40, 57, 58, 59,60,118,119,120,121 socioeconomic status, 15, 40 see also Age factors; Elderly persons; Geographic factors; Populationbased studies; Race/ethnicity Demonstration projects, 6, 7, 94 see also Case studies Department of Health and Human Services, 5-6, 43, 49, 73, 74, 84, 86, 93 see also Agency for Healthcare Research and Quality; Centers for Disease Control and Prevention; Food and Drug Administration; Health Care Financing Administration; 157 National Center for Health Statistics; National Institutes of Health Department of Veterans Affairs, 6, 7, 38, 8~85, 90, 92 Diabetes, 52, 63, 85 Diagnosis, 4-5, 8, 9, 12, 39, 70, 92, 110, 114-115, 121 biopsies, 25, 30, 47, 70, 112, 137 breast cancer, 12, 28, 30, 47, 50, 70, 112, 132-140; see also Mammography case studies, 20, 21,25, 28, 30, 34, 79 cervical cancer, 121 recently diagnosed patients, 1-2, 9, 15,31,42,46,76, 118, 119, 135 registry data, 37-38, 40, 41, 42, 45, 92, 132-137 secondary cancer, 12, 53, 117 see also Stage of cancer Drug treatment, see Chemotherapy; Medication E Economic factors, 2, 43, 52, 115 costs of assessment, 19, 31, 59, 75, 80, 119, 127 costs ofcare, 19,21,25,38,39,44, 116, 120, 126, 134 socioeconomic status, 15 see also Funding; Health Care Financing Administration; Health insurance Educational attainment, 121 Education and training funding, 23, 90, 119 patient, 49, 69, 71, 112, 116, 117 professional, 1, 22, 23, 52, 59, 67, 90, 94, 110, 119 Elderly persons, 39, 69, 92, 111, 115, 120, 121-122, 125, 132, 135, 136, 139 Medicare, 32-33, 38, 39, 40, 43, 58, 69,75,87,91,93,115,118,120, 125, 133, 135 Electronic Communications Privacy Act, 73 Electronic patient records, see Computerbased patient records Read the entire page →
From page 158... ... , 26,36,83,85 Freedom of Information Act, 72 Funding, 6-7, 18,37,43,89, 119 education and training, 23, 90, 119 National Program of Cancer Registries, 6, 7, 57, 61, 87, 88, 92-93 peer review organizations, 92 registries, 42, 57, 59, 88, 89 G Gender factors, 33, 65, 132, 146 see also Breast cancer; Cervical and uterine cancer; Prostate cancer Geographic factors, 9, 11, 15, 16, 46, 57, 59,61,65,66,77,81,82,93, 115, 125, 135, 146 rural areas, 59, 138 urban areas, 33, 65, 133, 138 INDEX H Healthcare Cost and Utilization Project, 44,45 Health Care Financing Administration (HCFA) , 6, 7, 63, 84-85, 88, 89, 92, 115, 125 case studies, 27, 32 linkage studies, 7, 38, 57 see also Medicaid; Medicare Health insurance, 5, 9, 55, 69, 71, 77, 84, 86,93, 117, 120 accreditation, 5-6, 27, 48, 68-69, 84, 116, 125-126 case studies, 20, 26-27, 28, 30-31, 33, 34, 55, 79 computer-based patient records, 53 fee-for-service plans, 33, 37, 38, 39, 40, 119 registries, linkage to, 37-38, 40-42, 45, 57-65 (passim) Read the entire page →
From page 159... ... , 71-72, 74, 91-93, 119, 135 National Cancer Institute, 7, 34, 37-39 SEER, 7, 38-39,41,45, 57, 62-63, 87,91,92-93, 118 Local systems of care, 12, 16, 42, 46, 6675, 92, 125 case studies, 20-22 see also Health insurance; Hospitals and hospitalization; Provider groups Lung cancer, 21, 39, 44, 47, 49, 70, 81, 85, 120, 135 M Males, see Gender factors; Prostate cancer Malpractice, 137 Mammography, 28, 21, 43, 47, 51, 62-63, 66, 1 1 1, 1 12, 137 Managed care, 40, 42-43, 45, 48-49, 68, 80-81, 1 19, 126 benchmarks, 9 case studies, 26, 30 geographic variation, 15 National Committee for Quality Assurance (NCQA) , 5, 48, 66-68, 8384,85,86, 116 see also Health insurance; Health maintenance organizations Medicaid, 69, 115, 139 Medical charts and records, 3, 5, 12, 40, 54-55,78,79,80,92, 112 case studies, 20, 23, 26, 28, 32-33, 34 see also Computer-based patient records; Privacy and confidentiality Medical Expenditure Panel Survey, 43 Medicare, 32-33, 38, 39, 40, 43, 58, 69, 75, 87, 91, 93, 115, 118, 120, 125, 133, 135 Medication, 19, 23, 27, 40, 43, 63, 1 13, 120, 132, 133, 138, 140 see also Chemotherapy; Pain and pain control (palliative care) Read the entire page →
From page 160... ... , 26, 27, 30, 35, 81, 84 National Coordinating Council for Cancer Surveillance, 62 National Death Index, 57 National Forum for Health Care Quality Measurement and Reporting, 49, 52, 86 National Health Interview Survey, 43 National Home and Hospice Care Survey, 44 National Hospital Discharge Survey, 44 National Institutes of Health, 6, 90 see also National Cancer Institute National Mortality Followback Survey, 44 National Program of Cancer Registries (NPCR) , 4, 39, 55, 56-64 (`passim) Read the entire page →
From page 161... ... INDEX case studies, 22, 27, 28-29, 36 see also Benchmarks; Outcome measures Pharmaceuticals, see Medication Political factors, 1 Population-based studies, 3, 12, 14-16, 45, 46, 55-63, 77, 81-82, 87, 88, 126, 142-145 cohort studies, 13, 15, 58 mammography, 63, 66 workshop agenda, 123-124 see also Demographic factors; National Cancer Data Base; National Program of Cancer Registries; Registries; Surveillance, Epidemiology, and End Results (SEER) program Poverty, see Socioeconomic status President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry, 49, 86, 114 Preventive Services Task Force, 13 Privacy Act, 72 Privacy and confidentiality, 3, 4, 7, 12, 45, 46, 71-75, 77, 94 case studies, 27, 32-33 computer-based records, 4, 71, 73, 81, 93 legislation, 72, 73, 74, 93 registries, 71-72, 73, 74, 93, 124 state government, 73, 74-75, 92 Process standards, 12, 13, 37, 46, 48, 66, 77, 80, 112, 118 case studies, 23, 26 see also Benchmarks Professional education and training, 1, 22, 23,52,59,67,90,94, 110, 119 PROs, see Peer review organizations Prostate cancer, 24, 31, 39, 41, 42, 45, 47, 49,60,85,113,133,136 surgery, 45, 85, 133 Provider groups, 9, 16, 19-23, 25, 34 Public opinion, 109, 110 Q Q-SPAN, 85 Quality Compass, 68 Quality Interagency Coordination Task Force, 49, 86 161 Quality-of-case measures, 2, 5, 40, 51, 61 67, 77, 78, 83-86, 109, 111-118, 119-120, 124 adaptability, 3, 17 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 case studies, 21, 24-26, 34, 36, 79 core set, 5-6, 12-13, 36, 46, 47-52, 114-116 discrete populations, 16 lacking, 3, 19, 75, 80, 81, 83 risk-adjusted, 39 time-series analysis, 3, 13, 16, 23-24 workshop agenda, 123 see also Accountability; Benchmarks; Outcome measures; Performance standards; Process standards; Standards, general Quality of life, 25, 27, 29, 41, 44, 45, 111 see also End-of-life care R Race/ethnicity, 11, 24, 33, 59, 60, 65, 120, 121, 132, 133, 136, 140, 146 African Americans, 59, 136 American Indians, 59 language factors, 67 Radiation therapy, 5, 24, 26, 40, 119, 133 American College of Radiology, 20, 23-24 breast cancer, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139 case studies, 23-24, 24, 25, 26, 27, 28,31,33 RAND, 91 Records, see Computer-based patient records; Medical charts and records; Privacy and confidentiality Registries,3, 5,39-42,61, 77, 78, 87-89, 91-92 administrative data and, 37-39 case studies, 20, 28, 29, 34 comorbidity, 58, 92, 135, 136, 140 computer-based patient records, 14, 53 diagnosis, 37-38, 40, 41, 42, 45, 92, 132-137 fimding, 42, 57, 59, 88, 89 Read the entire page →
From page 162... ... program North American Association of Central Cancer Registries, 56, 62, 146-147 outcome measures, 37, 58 privacy and confidentiality, 71-72, 73,74,93, 124 special studies, 37, 39, 41-42, 45, 87, 91-92 stage of cancer, 37, 40, 45, 58, 84, 92, 136, 139 standards, general, 39, 57, 59, 64, 146-147 state government role, 5, 6, 20, 3233, 39, 40-42, 45, 56-60, 64-65, 72, 74-75, 84, 88, 91-93 indicators of data quality, by state, 142-146 individual state studies, 132-140 survival rate s, 58, 65, 139, 140 workshop agenda, 123-124 see also National Cancer Data Base; National Program of Cancer Registries Reporting requirements, 3, 6, 14, 15, 17, 53-55, 79, 112 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 comorbidity, standards, 6, 12, 14, 19, 54-55,77,84,85-86,87,90 stage of cancer, standards, 3, 6, 12, 14, 19, 46, 53-54, 77, 84, 85-86, 90 standards, general, 3, 14, 39, 69, 75, 77,79,80 treatment, standards, 20, 46, 87 see also Computer-based patient records; Registries Risk factors, 39, 42, 43, 49 smoking, 42, 43, 63, 117 INDEX Rural areas, 59, 138 S Sampling, 15-16,24,41,43,44,49,83 Secondary (metastatic) cancer, 12, 53, 117 SEER, see Surveillance, Epidemiology, and End Results (SEER) Read the entire page →
From page 163... ... program State Inpatient Database, 44 Statistical analyses, 13, 15, 49, 136 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 case-control studies, 13 clinical trials, 12, 13, 41, 43, 47, 81, 111, 116, 117 cohort studies, 13, 15, 58 cross-sectional studies, 3, 12,42,46, 77 sampling, 15-16,24, 41,43, 44, 49, 83 time-series analysis, 3, 13, 16, 23-24 Supportive care, 9, 20, 43 Surgery, 44, 70, 113, 135, 142-143 breast cancer,25,26,28, 30-31,43,44, 47, 50,70, 81, 89, 112,113, 132-140 colon cancer, 33, 44, 70 prostate cancer, 45, 85, 133 Surveillance, 118-119 see also National Cancer Data Base; National Program of Cancer Registries; Registries; Reporting requirements; Surveillance, Epidemiology, and End Results (SEER) program Surveillance, Epidemiology, and End Results (SEER) Read the entire page →

From page 155...

... , 138, 139, 140, 146 see also Elderly persons Agency for Healthcare Research and Quality (AHRQj, 6, 7, 34, 44, 45, 48, 49, 71, 84-85, 89, 90, 91, 92, 117, 126 Aggregate quality scores, 3, 12, 16, 17, 30,46,69,71,78 AIDS Cost and Services Utilization Study, 43 Ambulatory care, 3, 5, 6, 34, 43, 65, 85, 88, 89, 118, 119, 142-143 American Association of Family Physicians, 85 American Cancer Society (ACS) , 41-42, 44,58, 126 see also National Cancer Data Base American College of Physicians, 85 American College of Radiology, 20, 2324 American College of Surgeons' CommissiononCancer,4,31,33, 116, 126 see also National Cancer Data Base American Diabetes Association, 85 American Indians, 59

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From page 156...

... , 79 diagnosis, not mammography, 12, 28, 30, 47, 50, 70, 112, 132-140 mammography,28,21,43,47, 51, 62-63,66,111,112,137 patient satisfaction, 25, 29, 51 quality-of-care measures, 47, 49, 5051,83 radiation therapy, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139 surgery,25,26, 28, 30-31,43,44,47, 50, 70, 81, 89, 112, 113, 132-140 survival rates and durations, 21, 26, 29, 139, 140 treatment, 12, 20, 39, 50, 79, 132, 133, 134; see also "radiation therapy " and "surgery" supra C Cancer Registries Amendment Act, 57, 72 Cancer Research Network, 42-43, 126 Case-control studies, 13 Case studies, 10, 18-36, 79, 80 benchmarks, 21, 36 INDEX breast cancer, 19, 20, 21, 25-36 (passim) , 79 chemotherapy, 21, 22, 25, 26, 33 clinical practice guidelines, 19, 20, 21,22,23,27,30,34-35,79 colorectal cancer, 20, 24, 27, 31, 3233 comorbidity, 19, 27, 33 computer-based patient records, 19, 20,22,30,79 diagnosis, 20, 21, 25, 28, 30, 34, 79 end-of-life care, 2O, 21, 36, 79 health insurance, 20, 26-27, 28, 3031,33,34,55,75 hospitals and hospitalization, 21, 25, 33,79 medical charts and records, 20,23, 26,28,32-33,34 outcome measures, 22, 23, 25, 26, 27 pain control, 21,36 patient satisfaction, 21, 25, 26, 29, 34 performance standards, 22, 27, 28-29, 36 privacy and confidentiality, 27, 32-33 process standards, 23, 26 quality-of-care measures, 21, 24-26, 34,36,79 radiation therapy, 23-24, 24, 25, 26, 27,28,31,33 registries, 20, 28, 29, 34 stages of cancer, 19, 25, 26-27, 28, 33,34 treatment, general, 20, 21, 27, 79 Centers for Disease Control and Prevention (CDC)

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From page 157...

... cancer, 12, 53, 117 Computer-based patient records, 2, 3, 4, 6, 10, 12, 13-14,38,52-53,75,77, 80-81, 90, 93 case studies, 19, 20, 22, 30, 79 Intranets, 6, 14, 53, 90 privacy and confidentiality, 4, 71, 73, 81,93 Confidentiality, see Privacy and confidentiality Consent, see Informed consent Consumer Assessment of Health Plans Survey, 34 Cost factors, see Economic factors Cross-sectional studies, 3, 12, 42, 46, 77 D Demographic factors, 11, 33, 40, 57, 58, 59,60,118,119,120,121 socioeconomic status, 15, 40 see also Age factors; Elderly persons; Geographic factors; Populationbased studies; Race/ethnicity Demonstration projects, 6, 7, 94 see also Case studies Department of Health and Human Services, 5-6, 43, 49, 73, 74, 84, 86, 93 see also Agency for Healthcare Research and Quality; Centers for Disease Control and Prevention; Food and Drug Administration; Health Care Financing Administration; 157 National Center for Health Statistics; National Institutes of Health Department of Veterans Affairs, 6, 7, 38, 8~85, 90, 92 Diabetes, 52, 63, 85 Diagnosis, 4-5, 8, 9, 12, 39, 70, 92, 110, 114-115, 121 biopsies, 25, 30, 47, 70, 112, 137 breast cancer, 12, 28, 30, 47, 50, 70, 112, 132-140; see also Mammography case studies, 20, 21,25, 28, 30, 34, 79 cervical cancer, 121 recently diagnosed patients, 1-2, 9, 15,31,42,46,76, 118, 119, 135 registry data, 37-38, 40, 41, 42, 45, 92, 132-137 secondary cancer, 12, 53, 117 see also Stage of cancer Drug treatment, see Chemotherapy; Medication E Economic factors, 2, 43, 52, 115 costs of assessment, 19, 31, 59, 75, 80, 119, 127 costs ofcare, 19,21,25,38,39,44, 116, 120, 126, 134 socioeconomic status, 15 see also Funding; Health Care Financing Administration; Health insurance Educational attainment, 121 Education and training funding, 23, 90, 119 patient, 49, 69, 71, 112, 116, 117 professional, 1, 22, 23, 52, 59, 67, 90, 94, 110, 119 Elderly persons, 39, 69, 92, 111, 115, 120, 121-122, 125, 132, 135, 136, 139 Medicare, 32-33, 38, 39, 40, 43, 58, 69,75,87,91,93,115,118,120, 125, 133, 135 Electronic Communications Privacy Act, 73 Electronic patient records, see Computerbased patient records

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From page 158...

... , 26,36,83,85 Freedom of Information Act, 72 Funding, 6-7, 18,37,43,89, 119 education and training, 23, 90, 119 National Program of Cancer Registries, 6, 7, 57, 61, 87, 88, 92-93 peer review organizations, 92 registries, 42, 57, 59, 88, 89 G Gender factors, 33, 65, 132, 146 see also Breast cancer; Cervical and uterine cancer; Prostate cancer Geographic factors, 9, 11, 15, 16, 46, 57, 59,61,65,66,77,81,82,93, 115, 125, 135, 146 rural areas, 59, 138 urban areas, 33, 65, 133, 138 INDEX H Healthcare Cost and Utilization Project, 44,45 Health Care Financing Administration (HCFA) , 6, 7, 63, 84-85, 88, 89, 92, 115, 125 case studies, 27, 32 linkage studies, 7, 38, 57 see also Medicaid; Medicare Health insurance, 5, 9, 55, 69, 71, 77, 84, 86,93, 117, 120 accreditation, 5-6, 27, 48, 68-69, 84, 116, 125-126 case studies, 20, 26-27, 28, 30-31, 33, 34, 55, 79 computer-based patient records, 53 fee-for-service plans, 33, 37, 38, 39, 40, 119 registries, linkage to, 37-38, 40-42, 45, 57-65 (passim)

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From page 159...

... , 71-72, 74, 91-93, 119, 135 National Cancer Institute, 7, 34, 37-39 SEER, 7, 38-39,41,45, 57, 62-63, 87,91,92-93, 118 Local systems of care, 12, 16, 42, 46, 6675, 92, 125 case studies, 20-22 see also Health insurance; Hospitals and hospitalization; Provider groups Lung cancer, 21, 39, 44, 47, 49, 70, 81, 85, 120, 135 M Males, see Gender factors; Prostate cancer Malpractice, 137 Mammography, 28, 21, 43, 47, 51, 62-63, 66, 1 1 1, 1 12, 137 Managed care, 40, 42-43, 45, 48-49, 68, 80-81, 1 19, 126 benchmarks, 9 case studies, 26, 30 geographic variation, 15 National Committee for Quality Assurance (NCQA) , 5, 48, 66-68, 8384,85,86, 116 see also Health insurance; Health maintenance organizations Medicaid, 69, 115, 139 Medical charts and records, 3, 5, 12, 40, 54-55,78,79,80,92, 112 case studies, 20, 23, 26, 28, 32-33, 34 see also Computer-based patient records; Privacy and confidentiality Medical Expenditure Panel Survey, 43 Medicare, 32-33, 38, 39, 40, 43, 58, 69, 75, 87, 91, 93, 115, 118, 120, 125, 133, 135 Medication, 19, 23, 27, 40, 43, 63, 1 13, 120, 132, 133, 138, 140 see also Chemotherapy; Pain and pain control (palliative care)

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From page 160...

... , 26, 27, 30, 35, 81, 84 National Coordinating Council for Cancer Surveillance, 62 National Death Index, 57 National Forum for Health Care Quality Measurement and Reporting, 49, 52, 86 National Health Interview Survey, 43 National Home and Hospice Care Survey, 44 National Hospital Discharge Survey, 44 National Institutes of Health, 6, 90 see also National Cancer Institute National Mortality Followback Survey, 44 National Program of Cancer Registries (NPCR) , 4, 39, 55, 56-64 (`passim)

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From page 161...

... INDEX case studies, 22, 27, 28-29, 36 see also Benchmarks; Outcome measures Pharmaceuticals, see Medication Political factors, 1 Population-based studies, 3, 12, 14-16, 45, 46, 55-63, 77, 81-82, 87, 88, 126, 142-145 cohort studies, 13, 15, 58 mammography, 63, 66 workshop agenda, 123-124 see also Demographic factors; National Cancer Data Base; National Program of Cancer Registries; Registries; Surveillance, Epidemiology, and End Results (SEER) program Poverty, see Socioeconomic status President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry, 49, 86, 114 Preventive Services Task Force, 13 Privacy Act, 72 Privacy and confidentiality, 3, 4, 7, 12, 45, 46, 71-75, 77, 94 case studies, 27, 32-33 computer-based records, 4, 71, 73, 81, 93 legislation, 72, 73, 74, 93 registries, 71-72, 73, 74, 93, 124 state government, 73, 74-75, 92 Process standards, 12, 13, 37, 46, 48, 66, 77, 80, 112, 118 case studies, 23, 26 see also Benchmarks Professional education and training, 1, 22, 23,52,59,67,90,94, 110, 119 PROs, see Peer review organizations Prostate cancer, 24, 31, 39, 41, 42, 45, 47, 49,60,85,113,133,136 surgery, 45, 85, 133 Provider groups, 9, 16, 19-23, 25, 34 Public opinion, 109, 110 Q Q-SPAN, 85 Quality Compass, 68 Quality Interagency Coordination Task Force, 49, 86 161 Quality-of-case measures, 2, 5, 40, 51, 61 67, 77, 78, 83-86, 109, 111-118, 119-120, 124 adaptability, 3, 17 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 case studies, 21, 24-26, 34, 36, 79 core set, 5-6, 12-13, 36, 46, 47-52, 114-116 discrete populations, 16 lacking, 3, 19, 75, 80, 81, 83 risk-adjusted, 39 time-series analysis, 3, 13, 16, 23-24 workshop agenda, 123 see also Accountability; Benchmarks; Outcome measures; Performance standards; Process standards; Standards, general Quality of life, 25, 27, 29, 41, 44, 45, 111 see also End-of-life care R Race/ethnicity, 11, 24, 33, 59, 60, 65, 120, 121, 132, 133, 136, 140, 146 African Americans, 59, 136 American Indians, 59 language factors, 67 Radiation therapy, 5, 24, 26, 40, 119, 133 American College of Radiology, 20, 23-24 breast cancer, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139 case studies, 23-24, 24, 25, 26, 27, 28,31,33 RAND, 91 Records, see Computer-based patient records; Medical charts and records; Privacy and confidentiality Registries,3, 5,39-42,61, 77, 78, 87-89, 91-92 administrative data and, 37-39 case studies, 20, 28, 29, 34 comorbidity, 58, 92, 135, 136, 140 computer-based patient records, 14, 53 diagnosis, 37-38, 40, 41, 42, 45, 92, 132-137 fimding, 42, 57, 59, 88, 89

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From page 162...

... program North American Association of Central Cancer Registries, 56, 62, 146-147 outcome measures, 37, 58 privacy and confidentiality, 71-72, 73,74,93, 124 special studies, 37, 39, 41-42, 45, 87, 91-92 stage of cancer, 37, 40, 45, 58, 84, 92, 136, 139 standards, general, 39, 57, 59, 64, 146-147 state government role, 5, 6, 20, 3233, 39, 40-42, 45, 56-60, 64-65, 72, 74-75, 84, 88, 91-93 indicators of data quality, by state, 142-146 individual state studies, 132-140 survival rate s, 58, 65, 139, 140 workshop agenda, 123-124 see also National Cancer Data Base; National Program of Cancer Registries Reporting requirements, 3, 6, 14, 15, 17, 53-55, 79, 112 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 comorbidity, standards, 6, 12, 14, 19, 54-55,77,84,85-86,87,90 stage of cancer, standards, 3, 6, 12, 14, 19, 46, 53-54, 77, 84, 85-86, 90 standards, general, 3, 14, 39, 69, 75, 77,79,80 treatment, standards, 20, 46, 87 see also Computer-based patient records; Registries Risk factors, 39, 42, 43, 49 smoking, 42, 43, 63, 117 INDEX Rural areas, 59, 138 S Sampling, 15-16,24,41,43,44,49,83 Secondary (metastatic) cancer, 12, 53, 117 SEER, see Surveillance, Epidemiology, and End Results (SEER)

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From page 163...

... program State Inpatient Database, 44 Statistical analyses, 13, 15, 49, 136 aggregate quality scores, 3, 12, 16, 17,30,46,69,71,78 case-control studies, 13 clinical trials, 12, 13, 41, 43, 47, 81, 111, 116, 117 cohort studies, 13, 15, 58 cross-sectional studies, 3, 12,42,46, 77 sampling, 15-16,24, 41,43, 44, 49, 83 time-series analysis, 3, 13, 16, 23-24 Supportive care, 9, 20, 43 Surgery, 44, 70, 113, 135, 142-143 breast cancer,25,26,28, 30-31,43,44, 47, 50,70, 81, 89, 112,113, 132-140 colon cancer, 33, 44, 70 prostate cancer, 45, 85, 133 Surveillance, 118-119 see also National Cancer Data Base; National Program of Cancer Registries; Registries; Reporting requirements; Surveillance, Epidemiology, and End Results (SEER) program Surveillance, Epidemiology, and End Results (SEER)

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Index Pages 155-163

Index
Pages 155-163