Enhancing Data Systems to Improve the Quality of Cancer Care (2000) / Chapter Skim
Currently Skimming:
The Data Infrastructure for Health Services Research
The Data Infrastructure for Health Services Research
Pages 37-45
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From page 37... ...
The linkage of cancer registry data to insurance claims databases, for example, has provided evidence of significant geographic variations in care and has suggested that care within certain HMOs for certain cancers is as good as, or superior to, the care provided in fee-for-service plans (Potosky et al., 1997; Riley et al., 19999. Registry data contain useful measures of severity of cancer (e.g., cancer stage)
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From page 38... ...
The currently available linked file includes all Medicare data through 1998 for persons diagnosed with cancer in 1996. Matching a case from the cancer registry to claims in the Medicare files is performed using a computer program that applies an algorithm to determine whether records from the two sources represent the same individual based on available identifying information (i.e., social security number, name, birth date, gender)
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From page 39... ...
If successful, it could foster public reporting of risk-adjusted quality measures for health plans or providers, provide techniques to develop benchmarking standards for internal quality improvement, and establish a standard for surveys of patients' appraisals of care. CANCER REGISTRIES AS A SAMPLING FRAME FOR SPECIAL STUDIES Another mechanism used to assess quality of care is to use cancer registries as a sampling frame for special studies.
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From page 40... ...
40 ENHANCING DATA SYSTEMS TO IMPROVE THE QUALITY OF CANCER CARE cer treatment and explanatory factors for variations in patterns of care. Currently, data are being collected on cases diagnosed in 1998 within SEER registries with cancer of the prostate, corpus uteri, pancreas, and chronic lymphocytic
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From page 41... ...
One of the larger special studies, the Prostate Cancer Outcomes Study, is addressing health-related quality-of-life issues among the increasing population of men identified with prostate cancer who have had radical prostactectomy. As part of this study, a cohort of 3,500 men with prostate cancer was identified from six SEER registries, and health-related quality of life is being measured at 6, 12, and 24 months and at 5 years following diagnosis.
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From page 42... ...
A new initiative of the NCI, the Cancer Research Network (CRN) , will encourage the expansion of collaborative cancer research among healthcare provider organizations that are oriented to community care; have access to large, stable, and diverse patient populations; and are able to take advantage of existing integrated databases that can provide patient-level information relevant to research studies on cancer control and to cancer-related population studies.
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From page 43... ...
FEDERAL HEALTH SURVEYS AND DATA The federal government spends a considerable amount on statistical activities related to health nearly a billion dollars alone on direct funding of major statistical programs within the Department of Health and Human Services (OMB, 20004. The results from surveys and other data collection activities provide national estimates of such health indicators as the prevalence of health conditions, the use of healthcare services, and healthcare expenditures.
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From page 44... ...
the Nationwide Inpatient Sample includes inpatient data from a national sample of about 1,000 hospitals, and . the State Inpatient Database covers inpatient care in community hospitals in 22 states that represent more than half of all U.S.
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From page 45... ...
The SEER program has conducted a number of special studies, including a recent study of quality-of-life issues among men with prostate cancer following prostatectomy. The American Cancer Society is piloting two cancer survivorship surveys using state registries as sampling frames.
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