Appendix C

Biographical Sketches of the Speakers and Moderators

DAY ONE

Introductory Remarks

Kimberly Knackstedt, PH.D., M.Ed., is the director of disability policy for the Domestic Policy Council. She was the senior disability policy advisor for Senator Patty Murray on the Health, Education, Labor, and Pensions Committee in the U.S. Senate. Before that, she served as the disability policy advisor for Chairman Bobby Scott on the Committee on Education and Labor in the U.S. House of Representatives. She received her bachelor of education in special education and elementary education from Gonzaga University and master of education in special education and Ph.D. in special education and policy from the University of Kansas.

I. Elements and Competencies of an Integrated System of Care

Moderator: James M. Perrin, M.D., is professor of pediatrics at Harvard Medical School and the John C. Robinson Distinguished Chair in Pediatrics at the Massachusetts General Hospital. He was president (2014) of the American Academy of Pediatrics, chair of its Committee on Children with Disabilities, and president of the Ambulatory (Academic) Pediatric Association. He directed the Autism Intervention Research Network on Physical Health for 7 years and was founding editor of Academic Pediatrics. An elected member of the National Academy of Medicine, he has served on the boards of Family

Voices, the Frank Porter Graham Child Development Institute (University of North Carolina), and the Institute for Exceptional Care.

Edward Schor, M.D., is a pediatrician and an independent consultant providing advice on child health care systems and child health policy. Most recently, he served as senior vice president at the Lucile Packard Foundation for Children’s Health, whose grantmaking focuses on health care system improvement for children with chronic and complex health conditions, where he initiated a variety of project defining standards for health care systems standards, care coordination, and family engagement. He has held senior positions with the Commonwealth Fund, where he worked to improve preventive child health care, Kaiser Family Foundation, where he promoted the adoption of functional health status measurement, and Iowa Department of Public Health, where he was medical director for Family and Community Health and director of the Center for Public Health Policy. He has written extensively on the family context of child health.

Lisa I. Iezzoni, M.D., M.Sc., is a professor of medicine, Harvard Medical School, and based at the Health Policy Research Center, Mongan Institute, Massachusetts General Hospital. Dr. Iezzoni has conducted numerous studies examining health care disparities for persons with disability. Her book When Walking Fails was published in 2003, and More Than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities, coauthored with Bonnie O’Day, appeared in 2006. Representing Boston Center for Independent Living, she chaired the Medical Diagnostic Equipment Accessibility Standards Advisory Committee for the U.S. Access Board (2012–2013). Dr. Iezzoni is a member of the National Academy of Medicine.

Nanfi N. Lubogo, CCHW, is co-executive director for PATH CT, a statewide family support organization for families of children and youth with special health care needs/disabilities. She serves on various committees, councils, and boards both in CT and nationally. Her appointments include vice president of the Family Voices board of directors, co-lead of the Family Voices United to End Racism Against Children and Youth with Special Health Care Needs (CYSHCN) and Families project, American Academy of Pediatrics Council on Children with Disabilities EDI Workgroup, and National Emergency Medical Services for Children (EMSC) Family Advisory Network. Ms. Lubogo is a former council member of the National Emergency Medical Services Advisory Council, where she served as cochair of the Education and Preparedness committee. Ms. Lubogo is a Maternal and Child Health/Public Health Leadership Fellow and Partners in Policy Making Graduate.

II. Challenges in Workforce Strength and Preparedness

Moderator: Kara Ayers, Ph.D., is the associate director and an associate professor at the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD). She is director of the Center for Dignity in Healthcare for People with Disabilities and also a cofounder of the Disabled Parenting Project. Dr. Ayers’ interests include disability identity/culture, health care equity, bioethics, community inclusion, and the use of media to teach, empower, and reduce stigma. She serves on multiple task forces and national and state coalitions related to improving outcomes for people with disabilities and infuses the mantra “Nothing about us without us” into all of her scholarly and community-based pursuits.

Matthew Holder, M.D., M.B.A., is recognized as an international leader in the emerging field of developmental medicine. Across the United States and around the world, his achievements in the development of clinical protocol, global health policy, and academic programming have improved the lives of tens of thousands of individuals with IDD. He is global medical advisor and chair of the Medical Advisory Committee for Special Olympics, International, CEO of Chyron and Advantage Medical Corp., and executive director and then president emeritus of the American Academy of Developmental Medicine and Dentistry.

Susan Havercamp’s research contributions lie in three areas: building a health surveillance evidence base, developing and evaluating health promotion interventions, and improving health care for patients with disabilities. Recognizing that the U.S. health care system is ill prepared to meet these patients’ needs, Dr. Havercamp partnered with people with disabilities and disability and health professionals to develop core competencies to guide training for health care professionals. She develops and implements disability training, helping to build a disability-competent health care workforce.

Amy Hewitt, Ph.D., has an extensive background in the IDD field. She has worked in various positions over the past 38 years to improve community inclusion and quality of life for children and adults with disabilities and their families. Her career began as a DSP, and she currently employs DSPs to support her brother-in-law. She is the director of the University of Minnesota’s Institute on Community Integration and conducts research, evaluation, and demonstration projects about community services for children, youth, and adults with IDD and the DSP workforce. She has authored numerous journal articles, curriculum, and technical reports, including a book entitled Staff Recruitment, Retention and Training. Dr. Hewitt is on the editorial board of Inclusion and associate editor of Intellectual and Developmental Disabilities,

both journals of the American Association on Intellectual and Developmental Disabilities (AAIDD). She is a past president of the Association of University Centers on Disability and AAIDD.

Spotlight Presentation

Maura Sullivan is the director of Operation House Call, a partnership between the Arc of Massachusetts and all major Massachusetts medical schools. This program teaches medical students and graduate nursing students the essential skills to enhance health care of persons with autism and other IDD. She is also the director of Government Affairs for the Arc; her work focuses on advocacy at the Massachusetts State House for people with disabilities. She is a national public speaker on health equity and a former LEND Fellow with an M.A. in public administration from Suffolk University. She is also the mother of three; her two sons have autism and mitochondrial disease.

III. Challenges in Financing and Payment

Moderator: Hoangmai (Mai) H. Pham is president of the Institute for Exceptional Care, a nonprofit dedicated to transforming health care for people with IDD. Dr. Pham is a general internist and national health policy leader. She was vice president at Anthem, responsible for value-based care initiatives. Prior to Anthem, Dr. Pham served as chief innovation officer at the CMMI, where she was a founding official and the architect of foundational programs on accountable care organizations and primary care. Dr. Pham has published extensively on provider payment policy and its intersection with health disparities, quality performance, provider behavior, and market trends. She serves on numerous advisory bodies, including for the National Academy of Medicine, National Advisory Council for the Agency on Healthcare Research and Quality, and Maryland Primary Care Program. Dr. Pham earned her A.B. from Harvard University, her M.D. from Temple University, and her M.P.H. from Johns Hopkins University, where she was also a Robert Wood Johnson Clinical Scholar.

Michael Monson is president and CEO of Altarum, a nonprofit health care consulting and research organization committed to improving the health of individuals with fewer financial resources and populations disenfranchised by the health care system. He is leading the next stage of Altarum’s growth, focused on transforming service delivery, advancing public health, integrating public health and service delivery, and scaling health infrastructure. Most recently, he was CEO of Social Health Bridge at Centene Corporation and senior vice president of Medicaid and Complex Care, where he had national

product responsibility for Centene’s Medicaid and Complex Care product lines, which included TANF, CHIP, foster care, Medicaid expansion, LTSS, ABD, and dual eligibles. He developed Centene’s strategy to address the social determinants of health and led its Center for Health Transformation, a collaboration with academic researchers that improved quality of care across its 12.5 million members in 30 states. He began his work in health care leading strategy and innovation at the Visiting Nurse Service of New York, a safety net organization that was also the nation’s largest home-based health care company. He was chief administrative officer at Village Care of New York, an integrated health system, where he ran multiple residential facilities and multiple corporate functions.

Ari Ne’eman is a Ph.D. candidate in health policy at Harvard University, senior research associate at the Harvard Law School Project on Disability, and visiting scholar at the Lurie Institute for Disability Policy. He was executive director of the Autistic Self Advocacy Network (2006–2016) and one of President Obama’s appointees to the NCD (2010–2015). He is working on a book on the history of American disability advocacy for Simon & Schuster.

Cheryl Powell is a health care executive with over two decades of experience in Medicaid, Medicare, and private health insurance policy, financing, and operations. She works with national leaders to transform our health care system to be more person driven through financing, payment incentive design, and delivery system reform. She has held a variety of leadership roles at CMS, IBM Watson Health, and MITRE (the Health Federally Funded Research and Development Center). In these roles, she has led major national reform and policy initiatives, including person-driven care and alignment of financial incentives to enhance care value and outcomes. She has an M.A. in public policy from the Kennedy School of Government at Harvard University and a B.A. from the University of Virginia.

DAY TWO

IV. Innovative Models of Care & Care Coordination

Moderator: Elizabeth Mahar is the director of Family & Sibling Initiatives at the Arc, National. She has nearly 20 years of experience in government affairs, public relations, and nonprofit sectors. Ms. Mahar has created partnerships for government and corporate clients with their target audiences to achieve measurable campaign results. She has significant experience in account management, local and national partnership development, event planning and execution, multicultural outreach, bilingual communications, marketing and strategy development, and implementation, writing, and editing.

Clarissa Kripke is clinical professor of Family and Community Medicine and Director of Developmental Primary Care at the University of California San Francisco. She provides primary medical care to some of the San Francisco Bay Area’s most medically fragile and behaviorally complex clients with developmental disabilities. She ran a multidisciplinary, mobile consult and assessment service in Northern California for people who were moving from institutions or at risk of institutionalization. She trains health professionals how to apply social model and neurodiversity models of disability to the practice of medicine.

Patricia Aguayo, M.D, M.P.H., is medical director of the HOME program and Autism Spectrum Disorder Clinic. She graduated from the Universidad Anahuac Medical School in Mexico City. Dr. Aguayo completed a psychiatry residency at New York Medical College and a child and adolescent psychiatry fellowship at the Yale Child Study Center. She holds an M.P.H. from the University of Arizona. She is the parent of a young adult with autism spectrum disorder (ASD) and has worked in the field of ASD for most of her career.

Lauren Easton served as the behavioral health leader for CCA. Over the years and in various roles, she has been largely responsible for developing CCA’s behavioral health integration across its care models and creating a responsive network and many innovative programs. She embraced the integration of behavioral health and medical care long before it became “trendy.” She has made behavioral health integration a hallmark of program development throughout her professional life. She is responsible for the oversight of CCA’s behavioral health services, delivered through its network of behavioral health providers and specialists to its 17,000+ members. She oversees the development and expansion of the One Care program, paying particular attention to the significant mental health needs of this population. She provides consultation, education, and support to clinicians and others in a provider network regarding behavioral health/substance abuse treatment and management and ensures that the organization can appropriately and effectively support the needs of enrollees with mental illness and other behavioral health needs. She actively collaborates with state agencies and legislators to support the development of innovative behavioral health services and programs throughout the state.

Spotlight Presentation

Vijay Ravindran is the cofounder and CEO of Floreo, a start-up building virtual reality autism therapy. He was the chief digital officer of a major media company, chief executive of a news start-up, and cofounder of a political

technology company that was active in the 2008 presidential campaign. He started his career as a software engineer and was at Amazon (1998–2005) in a variety of technology roles, including technology director. In 2005, he joined former White House Deputy Chief of Staff Harold Ickes to launch the political technology start-up Catalist. As its founding chief technology officer, he led all the technology aspects of developing its software and data products. During the 2008 election cycle, Catalist clients included the Obama for America and Hillary Clinton presidential campaigns. He graduated from the University of Virginia with a B.S. in systems engineering.

V. Innovations in Workforce Solutions: Role of General Health Care Providers

Moderator: Susan Hingle is an internal medicine specialist and a professor of medicine who serves as associate dean for Human and Organizational Potential and director of Faculty Development at Southern Illinois University School of Medicine. She is active in organized medicine, having served as chair of the American College of Physicians board of regents and board of governors. She is on the American Medical Women’s Association board of directors and the American Medical Association’s Women Physician Section Governing Council. She has a son who is on the autism spectrum and has suffered from intolerance, inflexibility, and lack of compassion and understanding. Dr. Hingle strongly believes that we must focus on equity and inclusion broadly to be able to reach our full potential as individuals, organizations, and professions. She earned a B.A. from Miami University and an M.D. from Rush University Medical College and completed an internal medicine residency at Georgetown University.

Kristin Sohl, M.D., FAAP, is a professor of clinical child health at the University of Missouri and founder and executive director of ECHO Autism, a global program partnering with clinicians and professionals to increase access to autism best practices. As a pediatrician with extensive experience in medical diagnosis, evaluation, and longitudinal support of people with autism and other developmental/behavioral disorders, she is a tireless advocate for children’s health, particularly related to changing systems to improve access to equitable care in rural and underserved locations. She is the president of the American Academy of Pediatrics, Missouri Chapter and the chair of the American Academy of Pediatrics, Autism Subcommittee within the Council on Children with Disabilities. She completed medical school and pediatric residency at the University of Missouri.

Lisa Howley, Ph.D., is senior director for the AAMC Transformation of Medical Education and adjunct associate professor at University of North Carolina Chapel Hill School of Medicine. She is an educational psychologist who has spent over 25 years in the field of medical education supporting learners and faculty, conducting research, and developing curricula. She joined the AAMC in 2016 to advance the continuum of medical education and support experiential learning and curricular transformation across its member institutions and their clinical partners. Before that, she spent 8 years as the associate Designated Institutional Official and Assistant Vice President of Medical Education and Physician Development for Carolinas HealthCare System in North Carolina, one of the largest independent academic medical centers in the United States, where she led a number of medical education initiatives across the professional development continuum, including graduate medical education accreditation and physician leadership development. She began her medical education career at the University of Virginia School of Medicine, where she designed and integrated clinical skills performance assessments and experiential learning activities across the medical curricula. She received her B.A. in psychology from the University of Central Florida and both her M.A. and Ph.D. in educational psychology from the University of Virginia.

Sarah Ailey, Ph.D., RN, FAAN, is a professor of nursing at Rush University in Chicago, Illinois. She is the principal investigator for the Partnering to Transform Health Outcomes with Persons with Intellectual and Developmental Disabilities Program (path-pwidd.org), funded through a 5-year grant from the Administration for Community Living. She is the president of the Alliance for Disability in Health Care Education (ADHCE.org).

VI. Innovations in Financing and Payment

Moderator: Hoangmai (Mai) H. Pham is president of the Institute for Exceptional Care, a nonprofit dedicated to transforming health care for people with IDD. Dr. Pham is a general internist and national health policy leader. She was vice president at Anthem, responsible for value-based care initiatives. Before that, Dr. Pham served as chief innovation officer at the CMMI, where she was a founding official, and the architect of foundational programs on accountable care organizations and primary care. Dr. Pham has published extensively on provider payment policy and its intersection with health disparities, quality performance, provider behavior, and market trends. She serves on numerous advisory bodies, including for the National Academy of Medicine, National Advisory Council for the Agency on Healthcare Research and Quality, and Maryland Primary Care Program. Dr. Pham earned her A.B. from Harvard University, her M.D. from Temple University, and her M.P.H.

from Johns Hopkins University, where she was also a Robert Wood Johnson Clinical Scholar.

Brede Eschliman is director of Medicare at Aurrera Health Group. Before that, she was a program examiner in the Medicare Branch at the Office of Management and Budget, where she reviewed, revised, and recommended clearance or nonconcurrence of proposed Medicare regulations and CMMI alternative payment models. She also spent several years working at CMMI, where she led model teams in designing, implementing, and improving alternative payment models, and as the director of operations at a community health center, where she oversaw revenue cycle activities, supervised practice managers and front desk staff, and conducted rapid-cycle process improvement to improve patient access and price transparency.

Sarah Hudson Scholle, D.P.H., Johns Hopkins University, is vice president of Research and Analysis at the NCQA. Dr. Scholle is an expert in health services and quality measurement in multiple settings and has a demonstrated record of moving innovative concepts into implementation through NCQA’s programs and Healthcare Effectiveness Data and Information Set. Dr. Scholle’s expertise ranges from equity and person-centered care to delivery system improvement. Her work on equity has addressed disparities in care, methods for summarizing and incentivizing health equity, and approaches for improving data. She has conducted numerous projects to advance the use of patient-reported outcomes in clinical care and quality measurement, including a novel approach to personalized goal setting.

Stephanie Rasmussen is the vice president of Long-Term Supports & Services for Sunflower Health Plan in Kansas. She has over 32 years of experience in LTSS, including providing direct services for persons with IDD, administration of an IDD provider association, and consultation in three states on the development of services for persons with IDD being placed out of closing state institutional settings. She has been with Sunflower Health, a managed long-term supports and services plan owned by Centene Corporation, for 9 years.

DAY THREE

VII. A New Vision for Models of Care

Moderator: Kara Ayers, Ph.D., is the associate director and an associate professor at the UCCEDD. She is director of the Center for Dignity in Healthcare for People with Disabilities and also a cofounder of the Disabled Parenting Project. Dr. Ayers’ interests include disability identity/culture, health

care equity, bioethics, community inclusion, and the use of media to teach, empower, and reduce stigma. She serves on multiple task forces and national and state coalitions related to improving outcomes for people with disabilities and infuses the mantra “Nothing about us without us” into all of her scholarly and community-based pursuits.

Moderator: Alicia Theresa Francesca Bazzano, Ph.D., is the chief health officer of Special Olympics. Dr. Bazzano provides strategic oversight of health activities around the world to ensure public funding, policies, medical training programs, and health service delivery are inclusive of people with intellectual disabilities. She is a pediatrician and public health executive who has dedicated her career to improving the health of people with intellectual disabilities. Prior to joining Special Olympics in 2019, she served as senior medical director for Health Policy at Acumen and chief physician at the Westside Regional Center in Los Angeles, which serves individuals with IDD. Dr. Bazzano was also deeply involved in founding the Achievable Health Center, a first-of-its-kind federally qualified health center dedicated to developmental disabilities, and served as founding cochief medical officer. Dr. Bazzano completed medical school and pediatric residency at UCLA and was a UCLA Clinical Scholar, selected by the Robert Wood Johnson Foundation. She also completed her M.P.H. and Ph.D. in the Department of Health Policy and Management at UCLA.

John A. Kitzhaber, M.D., graduated from University of Oregon Medical School and practiced emergency medicine in Roseburg, Oregon. He served in the Oregon House and State Senate and as Oregon’s longest-serving governor (1995–2003 and 2011–2015). He authored the Oregon Health Plan in 1989, which built a defined benefit based on a prioritized list of health service, and is a chief architect of Oregon’s coordinated care organizations, which now provide care to over a million Oregonians within a global budget indexed to a sustainable growth rate, while meeting quality and outcome metrics. In 2013, Modern Healthcare Magazine ranked him #2 on the list of the “100 Most Influential People in Health Care” and #1 on the list of the “50 Most Influential Physician Executives.” He is a writer, speaker and private consultant on health policy and politics, and chair of health policy at the Foundation for Medical Excellence.

Sharon Lewis is a nationally lauded expert in disability policy spanning HCBS, education, employment, independent living supports, and person-centered services. She is a principal at Health Management Associates and works with federal partners, states, providers, and consumer advocates to advance opportunities for people with disabilities to fully participate in all aspects of community, across the life-span. Ms. Lewis is a collaborator and

consensus builder with a natural ability to put policy into practical perspective. She has served in presidentially appointed leadership roles at the U.S. Department of HHS, including principal deputy administrator of the Administration for Community Living, senior disability policy advisor to the HHS Secretary, and commissioner of the Administration on Intellectual and Developmental Disabilities.

Charlene Wong, M.D., MSHP, is an assistant professor of pediatrics and public policy at Duke University and the Duke-Margolis Center for Health Policy. She is the executive director of the North Carolina Integrated Care for Kids model. As a pediatrician and health services researcher, she researches health care transformation and health-related behavior change, leveraging principles from behavioral economics and employing a person-centered approach to research and policy. She is a leader in value-based payment models for child and family health. She serves as the program director for Health Behaviors and Needs Research in the Duke Children’s Health & Discovery Initiative and associate program director for the National Clinician Scholars Program at Duke. Her research training includes fellowships at CDC and in the Robert Wood Johnson Foundation Clinical Scholars Program.

Spotlight Presentation

Maulik M. Trivedi is a board-certified emergency medicine physician in practice for over 20 years and was the chair or associate chair of several EDs. He continues to practice in the NYC area. He is a founding partner of StationMD and has been instrumental in helping it achieve its mission of improving the quality of care for the population with IDD. He is a recognized national speaker and thought leader on using technology and telehealth solutions to positively impact medical care and foster independence. He and his family live in midtown Manhattan.

VIII. Technical and Policy Opportunities in Financing and Payment

Moderator: Julia Bascom serves as executive director at the Autistic Self Advocacy Network (ASAN). ASAN was created to serve as a national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. ASAN focuses substantial attention on health care policy and policy regarding HCBS. She also serves on the advisory board of Felicity

House, Anthem’s National Advisory Board, and the boards of the Consortium for Citizens with Disabilities, the Institute for Exceptional Care, and Allies For Independence.

Alyna Chien is a physician researcher based at Harvard Medical School and Boston Children’s Hospital and focused on the relationship between incentives and disparities. After providing most of the available empirical information on the effectiveness of value-based purchasing and care quality for children, she created the Children with Disabilities Algorithm and received an R01 from the Eunice Kennedy Shriver National Institute of Child Health and Human Development to examine health care transitions for adolescents and young adults with IDD. Dr. Chien’s national committee service has included the Patient Centered Outcome Research Institute (Disparities), National Quality Forum (Risk Adjustment), CMMI (Next Generation Accountable Care Organizations), and National Academies of Medicine (Value Incentives and System Innovation Collaborative). However, at the beginning and end of each day, she is the proud aunt, godmother, and sister-in-law to family members with IDD.

Colleen Kidney is a policy associate at Human Services Research Institute, where she consults with jurisdictions undertaking systems redesign initiatives for their HCBS waiver programs. She specializes in developing individual budget methodologies using assessment of support needs. Her work emphasizes data-driven and stakeholder-engaged approaches to promoting equity and self-determination in individuals with IDD. Dr. Kidney received her Ph.D. in applied community psychology from Portland State University and resides in Portland, Oregon.

Joan Alker is the executive director and cofounder of the Center for Children and Families and a research professor at the Georgetown University McCourt School of Public Policy. She is a nationally recognized expert on Medicaid and CHIP and the lead author of an annual report on children’s health care coverage trends. Other recent work areas include “Children’s Health Insurance Coverage: Progress, Problems and Beyond” Health Affairs 2020, a series of reports looking at Medicaid’s role in rural areas, and a great deal of work on Section 1115 waivers. She holds an M.Phil. in politics from St. Antony’s College, Oxford University, and a B.A. with honors in political science from Bryn Mawr College.

Joshua M. Sharfstein is professor of the Practice in Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health, where he also serves as vice dean for Public Health Practice and Community Engagement and as director of the Bloomberg American Health Initiative. He is a

former health commissioner of Baltimore, principal deputy commissioner of the U.S. Food and Drug Administration, and health secretary of Maryland. Dr. Sharfstein teaches a class called “Crisis and Response in Public Health Policy and Practice” and authored Public Health Crisis Survival Guide: Leadership and Management in Trying Times (2018) and coauthored The Opioid Epidemic: What Everyone Needs to Know (2019).

IX. SCALING WORKFORCE SOLUTIONS

Moderator: Sandra Schneider, M.D., FACEP, is the senior vice president for Clinical Affairs at the American College of Emergency Physicians and adjunct professor of emergency medicine at the University of Pittsburgh. She was the founding chair of the Department of Emergency Medicine at the University of Rochester. She is a former president of the American College of Emergency Physicians, Society for Academic Emergency Medicine, and Association of Academic Chairs of Emergency Medicine. She is the author of over 100 peer-reviewed publications and over 50 textbook chapters.

Helen Burstin, M.D., M.P.H., MACP, is the CEO of the Council of Medical Specialty Societies, a coalition of 47 specialty societies representing more than 800,000 physicians. Dr. Burstin was scientific officer of the National Quality Forum. She serves on the boards of AcademyHealth and the Society to Improve Diagnosis in Medicine. Dr. Burstin is the author of more than 100 articles and book chapters on quality, safety, equity, and measurement. She is a clinical professor of medicine at George Washington University School of Medicine and Health Sciences. Her recent awards include the Alpha Omega Alpha Medical Voluntary Attending Award from the George Washington School of Medicine and Mastership from the American College of Physicians.

Karrie A. Shogren, Ph.D., is director of the Center on Developmental Disabilities (a University Center for Excellence in Developmental Disabilities), senior scientist at the Schiefelbusch Life Span Institute, and professor in the Department of Special Education, all at the University of Kansas. Dr. Shogren’s research focuses on assessment and intervention in self-determination and supported decision making for people with disabilities. She has led multiple grant-funded projects, including assessment validation and efficacy trials of self-determination interventions in school and community contexts. Dr. Shogren has published over 200 articles in peer-reviewed journals, authored or coauthored 10 books, and is the lead author of the Self-Determination Inventory (www.self-determination.org), a recently validated assessment of self-determination and the Supported Decision-Making Inventory System,

the first assessment of the supports needed to involve people with IDD in decisions about their lives.

Andrés J. Gallegos, Esq., is the chair of the NCD, appointed to that position by President Biden on the afternoon of his inauguration. NCD is an independent federal agency mandated to advise the president, administration, Congress, and federal agencies on all policy matters affecting people with disabilities in the United States and its territories. He is also a disability rights and health care law attorney in Chicago, Illinois, with Robbins, Salomon & Patt, where he founded and directs the national disability rights practice. He is a person with a disability, having sustained a spinal cord injury resulting in quadriplegia 25 years ago.

CLOSING REMARKS

Richard J. “Rick” Gilfillan is president and CEO of Trinity Health, the $15.9 billion Catholic health system that serves communities in 22 states with 92 hospitals, 120 continuing care locations, and home health and hospice facilities that provide more than 2.5 million home health and hospice visits annually. For more than 30 years, he has built successful organizations in the for-profit and not-for-profit sectors to deliver better outcomes for people and communities. As the first director of the CMMI, he launched it in 2010 and worked quickly with payers and providers to develop innovative models for improving patient care and reducing costs.

Before that, he was president and CEO of Geisinger Health Plan and executive vice president of insurance operations for Geisinger Health System, a large integrated health system in Pennsylvania. He was the senior vice president for national network management at Coventry Health Care. He also held earlier executive positions at Independence Blue Cross.

He began his career as a family medicine physician and later became a medical director and a chief medical officer. He earned his undergraduate and medical degrees from Georgetown University and an M.B.A. from the Wharton School of the University of Pennsylvania.