References

ADHCE (Alliance for Disability in Health Care Education). 2019. Core competencies on disability for health care education. Peapack, NJ: Alliance for Disability in Health Care Education.

AHRQ (Agency for Healthcare Research and Quality). 2014. Working for quality: Achieving better health and health care for all Americans. Washington, DC: Agency for Healthcare Research and Quality.

Bodenheimer, T., E. H. Wagner, and K. Grumbach. 2002. Improving primary care for patients with chronic illness. Journal of the American Medical Association 288(14):1775–1779. https://doi.org/10.1001/jama.288.15.1909.

Bowen, C. N., S. M. Havercamp, S. Karpiak Bowen, and G. Nye. 2020. A call to action: Preparing a disability-competent health care workforce. Disability and Health Journal 13(4):100941. https://doi.org/10.1016/j.dhjo.2020.100941.

Breslin, M. L., and S. Yee. 2009. The current state of health care for people with disabilities. https://files.eric.ed.gov/fulltext/ED507726.pdf (accessed August 31, 2022).

CCA (Commonwealth Care Alliance). 2019. Commonwealth Care Alliance presentation for Vermont Blueprint Health. https://blueprintforhealth.vermont.gov/sites/bfh/files/CCA-at-Blueprint-for-Health-VT-vFinal.pdf (accessed May 25, 2022).

CCA. 2021. CCA annual report: 2020. https://www.commonwealthcarealliance.org/about-us/newsroom-publications/2021-cca-annual-report (accessed May 25, 2022).

Crane, J. M., J. G. Strickler, A. T. Lash, A. Macerollo, J. A. Prokup, K. A. Rich, A. C. Robinson, C. N. Whalen Smith, and S. M. Havercamp. 2021. Getting comfortable with disability: The short- and long-term effects of a clinical encounter. Disability and Health Journal 14(2):100993.

Ennis, G., and M. Tofa. 2020. Collective impact: A review of the peer-reviewed research. Australian SocialWork 73(1):32–47. https://doi.org/10.1080/0312407X.2019.1602662.

Family Voices. n.d. About Family Voices. https://familyvoices.org/about (accessed May 25, 2022).

Fulmer, T., E. Flaherty, and K. Hyer. 2004. The geriatric interdisciplinary team training (GITT) program. Gerontology and Geriatrics Education 24(2):3–12. https://doi.org/10.1300/j021v24n02_02.

Havercamp, S. M., W. R. Barnhart, A. C. Robinson, and C. N. Whalen Smith. 2021. What should we teach about disability? National consensus on disability competencies for health care education. Disability and Health Journal 14(2):100989. https://doi.org/10.1016/j.dhjo.2020.100989.

ICS (Independence Care System). 2016. A blueprint for improving access to primary care for adults with physical disabilities. https://nyhealthfoundation.org/resource/blueprint-for-improving-access-to-primary-care-adults-physical-disabilities (accessed June 15, 2022).

Iezzoni, L. I., S. R. Rao, J. Ressalam, D. Bolcic-Jankovic, N. D. Agaronnik, K. Donelan, T. Lagu, and E. G. Campbell. 2021. Physicians’ perceptions of people with disability and their health care. Health Affairs 40(2):297–306. https://doi.org/10.1377/hlthaff.2020.01452.

Krahn, G. L., L. Hammond, and A. Turner. 2006. A cascade of disparities: Health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disability Research Review 12(1):70–82. https://doi.org/10.1002/mrdd.20098.

Kripke, C., M. Giammona, A. Fox, and J. Shorter. 2011. The CART model: Organized systems of care for transition age youth and adults with developmental disabilities. International Journal of Child and Adolescent Health 3(4):473–477.

Larson, S. A., K. C. Lakin, L. Anderson, N. Kwak, J. H. Lee, and D. Anderson. 2001. Prevalence of mental retardation and developmental disabilities: Estimates from the 1994/1995 National Health Interview Survey disability supplements. American Journal of Mental Retardation 106(3):231–252.

Lulinski, A., N. T. Jorwic, E. S. Tanis, and D. Braddock. 2018. Rebalancing of long-term supports and services for individuals with intellectual and developmental disabilities in the United States. Boulder, CO: Coleman Institute for Cognitive Disabilities, University of Colorado. https://www.colemaninstitute.org/wp-content/uploads/2018/04/SOS-Brief-2018_2_Rebalancing.pdf (accessed May 20, 2022).

Meeks, L. M., and N. R. Jain. 2018. Accessibility, inclusion, and action in medical education: Lived experiences of learners and physicians with disabilities. Washington, DC: Association of American Medical Colleges. https://store.aamc.org/downloadable/download/sample/sample_id/249 (accessed May 20, 2022).

NCD (National Council on Disability). 2009. The current state of health care for people with disabilities. Washington, DC: National Council on Disability. https://ncd.gov/publications/2009/Sept302009#CHAPTER%202 (accessed May 20, 2022).

Ning, M., J. Daniels, J. Schwartz, K. Dunlap, P. Washington, H. Kalantarian, M. Du, and D. P. Wall. 2019. Identification and quantification of gaps in access to autism resources in the United States: An infodemiological study. Journal of Medical Internet Research 21(7):e13094. https://doi.org/10.2196/13094.

Parish-Morris, J., R. Solórzano, V. Ravindran, V. Sazawal, S. Turnacioglu, A. Zitter, J. Miller, and J. McCleery. 2018. Immersive virtual reality to improve police interaction skills in adolescents and adults with autism spectrum disorder: Preliminary results of a feasibility and safety trial. Paper presented at 23rd Annual CyberPsychology, CyberTherapy, and Social Networking Conference, Gatineau, Canada.

Pynchon, T. 1973. Gravity’s rainbow. New York: Viking Press.

Reichard, A., H. Stolzle, and M. H. Fox. 2011. Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. Disability and Health Journal 4(2):59–67. https://doi.org/10.1016/j.dhjo.2010.05.003.

Schor, E. L. 2019. An almost complete list of services used by families and children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children’s Health.

Sullivan, W. F., H. Diepstra, J. Heng, S. Ally, E. Bradley, I. Casson, B. Hennen, M. Kelly, M. Korossy, K. McNeil, D. Abells, K. Amaria, K. Boyd, M. Gemmill, E. Grier, N. Kennie-Kaulbach, M. Ketchell, J. Ladouceur, A. Lepp, Y. Lunsky, S. McMillan, U. Niel, S. Sacks, S. Shea, K. Stringer, K. Sue, and S. Witherbee. 2018. Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Canadian Family Physician 64(4):254–279.

Turnacioglu, S., V. Sazawal, R. Solórzano, J. Parish-Morris, A. Zitter, J. Miller, J. McCleery, and V. Ravindran. 2019. The state of virtual and augmented reality therapy for autism spectrum disorder. In Virtual and Augmented Reality in Mental Health Treatment, edited by G. Guazzaroni. Hershey, PA: IGI Global. Pp. 118–140.

U.S. Public Health Service. 2001. Closing the gap: A national blueprint for improving the health of individuals with mental retardation. Report of the Surgeon General’s conference on health disparities and mental retardation. Washington, DC: U.S. Public Health Service.

WHO (World Health Organization). 2011. World report on disability. https://www.who.int/publications/i/item/9789241564182 (accessed June 15, 2022).

WHO. 2020. Basic documents, 49th edition (including amendments adopted up to 31 May 2019). Geneva, Switzerland: World Health Organization.

Wilkinson, J., D. Dreyfus, M. Cerreto, and B. Bokhour. 2012. “Sometimes I feel overwhelmed”: Educational needs of family physicians caring for people with intellectual disability. Intellectual and Developmental Disabilities 50(3):243–250.

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